Hope for Tayler Gailey
“15 Years After a Terminal Diagnosis, Tayler Is Fighting Again, Help us help our girl through this battle”
Nationwide
Tayler's story...
Tayler was diagnosed at age 2 in 2011 with Diffuse Intrinsic Pontine Glioma (DIPG) and given 59.4 gy of radiation to the brainstem and given 9 months to live.
Against all odds she is now 17, she is a beautiful, brave, and funny soul absolutely adored by her family. Aside from the effects of the radiation and the tumor she has been stable and has lived disease free for the past 15 years. However, on her 17th birthday Tayler was diagnosed with another "bigger and deeper" glioblastoma (radiation induced) in her brain stem - after having had an MRI due to facial numbness. The only medical option the family have been given now is to do further radiation to try and subdue the tumour growth to give her more time but even with this done there are no curative treatment options only palliative care ones.
To get this news years on after such a fight in her early years to have her here - its traumatic and devastating to say the least. Her family is in shock and just trying to be there for Tayler and each other as best they can.
Hence why this 'Give a little' has been created on behalf of Tayler's family, with the hope of being able to provide them with some funds to be able to give Tayler access to therapies to enhance her quality of life - such as hyberbaric oxygen therapy and to be able to purchase or access equipment to help her with mobility and comfort.
Thankyou so much for any support you can give
kat neal's involvement (page creator)
Lisa Gailey (Tayler's wonderful Mother) is my cousin and friend.
Use of funds
30/07 The funds raised through our Givealittle will now help support both Tayler and Lisa throughout their treatment journeys, helping with travel, accommodation, fuel, meals, lost income, medical appointments, and ensuring we can continue to provide the care and support they both need.
Funds will be spent on therapies or items to help improve Tayler's quality of life eg hyberbaric oxygen therapy and to purchase or access equipment to help her mobility.
Other page links
Latest update
Where we are at - by Lisa 13 October 2026
It’s been a while, so we wanted to share an update on how we are doing.
Tayler is doing incredibly well and continuing to defy all odds! Her August scan showed "overall improvement"—a world away from her February prognosis. She has regained more use of her left hand, her eyes have improved, and the NG tube is completely gone as she eats and drinks on her own. Because of her rare, "novel" genetic mutation (NTRK3::GBN5 fusion), she is on larotrectinib, a targeted drug shutting down the tumor's growth driver. She is responding well, and we await her next scan in November. Plus, she finishes blood thinners soon. Best of all... she is going back to school tomorrow! 🥲🥰
My own treatment is also going well. After one final round of chemo this week, I have surgery in about three weeks, and then I'll be on the home stretch. The treatment has had a great response—the lump was no longer palpable just 10 days after the first cycle!
We are so grateful to Tayler’s big sister and Nana for taking amazing care of her while I've been in treatment. Because of your incredible support on this page, we have been able to secure a mobility van, a hyperbaric chamber, a hydrogen inhalation machine, a transfer chair, a gait trainer, and an arm rehabilitation device. I am constantly searching the world for new trials, believing a cure is around the corner.
Thank you all for helping us help her. We are eternally grateful xx
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