“15 Years After a Terminal Diagnosis, Tayler Is Fighting Again, Help us help our girl through this battle”
Nationwide
Tayler's story...
Tayler was diagnosed at age 2 in 2011 with Diffuse Intrinsic Pontine Glioma (DIPG) and given 59.4 gy of radiation to the brainstem and given 9 months to live.
Against all odds she is now 17, she is a beautiful, brave, and funny soul absolutely adored by her family. Aside from the effects of the radiation and the tumor she has been stable and has lived disease free for the past 15 years. However, on her 17th birthday Tayler was diagnosed with another "bigger and deeper" glioblastoma (radiation induced) in her brain stem - after having had an MRI due to facial numbness. The only medical option the family have been given now is to do further radiation to try and subdue the tumour growth to give her more time but even with this done there are no curative treatment options only palliative care ones.
To get this news years on after such a fight in her early years to have her here - its traumatic and devastating to say the least. Her family is in shock and just trying to be there for Tayler and each other as best they can.
Hence why this 'Give a little' has been created on behalf of Tayler's family, with the hope of being able to provide them with some funds to be able to give Tayler access to therapies to enhance her quality of life - such as hyberbaric oxygen therapy and to be able to purchase or access equipment to help her with mobility and comfort.
Thankyou so much for any support you can give
Lisa Gailey (Tayler's wonderful Mother) is my cousin and friend.
Funds will be spent on therapies or items to help improve Tayler's quality of life eg hyberbaric oxygen therapy and to purchase or access equipment to help her mobility.
Tayler update - 12th June 2026 13 June 2026
After over 3 weeks at Starship and some scary times Tayler is now off all oxygen support, has completed 5 radiation treatments, has been cleared for a puréed diet, and now solid food!
For someone who was in PICU, on a ventilator, fighting severe pneumonia, a collapsed lung and being discussed in family meetings we never imagined we’d have to have, this feels huge.
In true Tayler fashion, she has made sure everyone knows exactly what she thinks about it too. After being cleared by the speech language therapist her response was:
“I told you I could swallow.”
After coming off oxygen:
“I told you I can breathe.”
And then..
“Now take me home.”
Followed by:
“I proved you all wrong.”
Honestly, that’s been Tayler’s whole life.
At 2 years old we were told she wouldn’t live to see 3 now at 17 years old she has survived all thst plus15 years of radiation injury and complications, another brainstem tumour diagnosis, severe pneumonia, a collapsed lung, PICU, ventilation .. more challenges than most people will ever face. Yet somehow she still manages to keep her sense of humour, her stubbornness, and her determination.
We still have a road ahead of us but next stop is.. home..
We are waiting for the equipment and supports we need at home - so Tay can be safely discharged, which may mean 2 more weeks in hospital while we wait.
Thank you to every person who has supported us in all the ways through the darkest days. We are forever grateful.
Never underestimate Tayler.
Thankyou Sian we appreciate it 🙏
Thankyou so much we are so grateful 🙏
Thankyou so much June 💓
Thankyou so much Alyssa 💓
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