Tayler update - 12th June 2026
13 June 2026
After over 3 weeks at Starship and some scary times Tayler is now off all oxygen support, has completed 5 radiation treatments, has been cleared for a puréed diet, and now solid food!
For someone who was in PICU, on a ventilator, fighting severe pneumonia, a collapsed lung and being discussed in family meetings we never imagined we’d have to have, this feels huge.
In true Tayler fashion, she has made sure everyone knows exactly what she thinks about it too. After being cleared by the speech language therapist her response was:
“I told you I could swallow.”
After coming off oxygen:
“I told you I can breathe.”
And then..
“Now take me home.”
Followed by:
“I proved you all wrong.”
Honestly, that’s been Tayler’s whole life.
At 2 years old we were told she wouldn’t live to see 3 now at 17 years old she has survived all thst plus15 years of radiation injury and complications, another brainstem tumour diagnosis, severe pneumonia, a collapsed lung, PICU, ventilation .. more challenges than most people will ever face. Yet somehow she still manages to keep her sense of humour, her stubbornness, and her determination.
We still have a road ahead of us but next stop is.. home..
We are waiting for the equipment and supports we need at home - so Tay can be safely discharged, which may mean 2 more weeks in hospital while we wait.
Thank you to every person who has supported us in all the ways through the darkest days. We are forever grateful.
Never underestimate Tayler.
