The next stage at home!
7 December 2024
Toby is now home, which, we dreamed would be the start of us putting this year behind us, and looking forward to happier times.
The reality is, it’s not quite like that. It’s raw, and it’s tough, and Toby has quite a journey ahead of him.
Toby developed an air leak and pneumothorax recently, which was unexpected given the time since surgery, so that extended our stay, and once home, he developed an infection which saw us straight back in to starship.
The physical recovery is one thing, but something that has blindsided us, is the mental health toll that the past few months, and indeed, the many years prior have taken on Toby.
Toby has PTSD. The scary events, and living in a life threatening state, on a knife edge at all times, is just too much. Toby swings between desperately wanting to be in starship, where he feels safe, and yet, not wanting to step foot inside, because the memories there are overwhelming. We feel helpless.
We are in the trenches right now, life is anything but normal, each day focuses on how to best support Toby, and finding all our strength to continue, hour by hour, as he tries to make sense of the rough blow he’s been given.
We are forever grateful to everyone that has helped us, in so many ways. Asking for help is hard, but we know we can’t do this on our own, so a very heartfelt thank you.
