Max is a 2yr old boy recently diagnosed with CSID (Congenital Sucrase-Isomaltase Deficiency).
Southland
Congenital Sucrase-Isomaltase Deficiency (CSID) is a rare autosomal recessive disorder, that affects a person’s ability to digest certain sugars due to absent or low levels of two digestive enzymes, sucrase and isomaltase. Sucrase and isomaltase are involved in the digestion of sugar and starch. Sucrase is the intestinal enzyme that aids in the breakdown of sucrose (table sugar) into glucose and fructose, which are used by the body as fuel. Isomaltase is one of several enzymes that help digest starches.
Due to the restrictions on Max's diet, shopping has become a complicated and expensive ordeal for a single parent family on a low income.
With CSID being a rare disorder which is dificult to understand, there is limited support and information available for Max and his mum.
Funds raised will go towards the added cost of Max's dietary needs and help with funding Max's mums quest to locate and gain information and support from medical professionals specialized in CSID and other families who also suffer from CSID.
Jo (Max's mum) is close family friend whom i have known since I was 3yrs old. Having a child with a rare disorder is stressful and we would like to help support her while she and her family work through the process of understanding and living with CSID.
Dunedin trip...next week 26.7.2015 17 August 2015
Thanks to all who have donated to Max's cause...feeling greatfull...:)
Next week we are of to Dunedin to see specialist, and hopefully have some results...Max lives with a sore tummy, lots of full nappys,bloated, sleepless nights, its been a long road ...please people cross your fingers for us...will post update ASAP
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