Skyla is my only granddaughter and has a terminal brain tumor called DIPG (diffuse intrinsic pontene glioma)
Bay of Plenty
On 8th of August Skyla was rushed to starship Children's Hospital after having trouble walking.
Skyla is 7 yrs old and has been battling a devastating brain tumor called DIPG for 26 months. She is my daughter Angie's only child.
In August 2015 after a course of radiation to shrink the tumor and give us more time with her we where told to go home and make memories.
Our time with this beautiful girl is running out. She can no longer run and play, she can no longer speak. She is aware of everything around her but her body has betrayed her. It is the most devastating situation I have ever personally seen.
I am involved as I want to support Skyla and Angie.
funds donated will be used for end of life care. To help give my daughter a break. I would like to help with natural therapies to ease Skyla's remaining time. A nutritionally dense feeding tube formula. I am wanting to get help with an electronic application which may help us communicated better with Skyla as she can no longer talk. I miss her squeeky wee voice. Meals to help my daughter so she has more time and energy as this is so tough on her.
Thank you so very much John
Thank you so very much.
Thank you so very much. Big hugs.
Thank you so very much.
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