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Supporting baby Ollyver, born with rare Amniotic Band Syndrome affecting his face and eye, as he faces multiple surgeries

  • Surgery next month

      20 April 2026
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    I have attached an article of daily mail for those that wish to read

    https://www.dailymail.co.uk/lifestyle/family-parenting/article-15722211/baby-scarred-rare-condition-womb-instincts-signs.html?ico=amp-comments-viewall&login=&flowVariant=social_registration_nosubscribe&loginType=social&_cds=eyJhbGciOiJFZERTQSIsImtpZCI6IkNEUy0xNzUxODg0MDMzIn0.eyJzdWIiOiJlNTViZWZkYS03Y2FmLTQ4NmEtYjJmYy1kN2I1ZTNjNTQ0YmYiLCJpYXQiOjE3NzY2NzQ1NzIsImV4cCI6MTc3Njc2MDk3Mn0.C_Rvxw_ep7ZK6vvOuW29ZYXfYrcJb19MsdIz0asce4MbRjVeWge3lQmBomucRiF3JYFcKkxYUPbrqaWYWcLyBg#

    Thank you all

    Photo attached is some of bands on his back head will be getting released very swollen

      2 comments  |  Login to leave a comment

    • 21/04/2026 by Sue

      So pleased to hear that Ollyver is developing well and meeting all his milestones. Wishing you well for the upcoming surgery . Sue Brandreth

    • 21/04/2026 by Maddicyn Brokenshire

      Thank you Sue. He is doing so well. So glad we got him into physio etc early to help

  • Surgery

      2 April 2026

    Ollie was meant to have eye surgery on Wednesday but has been cancelled as now wellingtion are going to include it in his big surgery around August time. Unfortunately we got told his eye ball isn’t growing anymore his eye is sinking in. He will start his journey soon to put pressure on his eye socket and head towards fake eye when bigger

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  • Surgery 6 months

      28 February 2026
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    Ollyver under going surgery again in 6 months time which will be another big surgery! They will be releasing the bands at back of his head. Eyes. They may be doing some eye surgery to just waiting to hear what chch says will keep you all posted! Thank you all once again for helping us

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  • Surgery

      8 February 2026
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    For those who don’t have Ollyver Facebook page. We are seeing eyes on 12th eye surgery looking like early March. We will post an update when confirmed and how they plan to do this surgery

    We fly welly 19th to see cranial specialist to look at back of his head plan surgery. I feel like this will be tricky one as he won’t be aloud to sleep on his back! Here is photo of the bands on his back head pretty swollen. Right at the back of his head feels tight. Few healthcare’s who see him have also mentioned this

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  • Seeing eyes 12th to plan for surgery early March

      8 February 2026
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    Ollyver eye deffo changed gotten thicker and looks so sore. This child does not sleep well! We hope eye surgery will help this. We have never left new born stages lol

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  • Eye

      7 January 2026
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    Hopefully we get an update for his eye soon he keeps touching it :(

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  • Update

      19 December 2025
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    Ollyver doing so well healing nicely. We fly to Wellington in Feb to discuss surgery for the back of his head even if it’s small bits at time will be happy as they are pretty swollen! Eye surgery was being talk about in Feb but it’s getting more painful for him so will see 😖

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  • Thank uou

      20 November 2025
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    Thank you all for your support Ollie had surgery for 6 hours today at Wellington hospital we are from timaru. He is still sleepy

    I have attached photo for those that wish to see

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  • Eye update:

      11 November 2025
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    💛 Ollie Eye Update 💛

    A little update on our brave boy — Ollie is doing so well! He should have full vision in his good eye, which is such amazing news. Today he was making so much eye contact and even let us put his drops in without a single tear 🥹💛

    He’s booked for major eye surgery in February in Christchurch, and the team will be working with specialists around the world to make the best plan for him. Later on, around age 2, he’ll likely have another surgery so his good eye can fully close.

    We’re so proud of our happy little fighter 💛✨

    All your donations are going to help alot with this surgery due to not having maternity payments we are so forever grateful

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  • So grateful

      2 November 2025
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    We are overwhelmed by all support means so much to us

    It also means he can keep going to chiropractor to help his neck as he was stuck in this position inside me and favours it. We have been seeing huge differences with those appts but weren’t able to afford to keep going

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  • Thank you

      28 October 2025
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    We are so overwhelmed by all kind words donations for our wee man. And getting his story out there in hopes will help someone else one day

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