Supporting James & his family

Update 4/7/2018

James passed away in his Mother’s arms Sunday 6th May 2018.

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5 year James has been fighting the biggest fight of his life since June 2016. He has beaten all the odds to date when it comes to this debilitating life limiting neurological condition which appeared in hislife just after he was 3.

There is no name, it closely resembles Motor Neurone Disease/SMA1 & SCA1 and it’s horrendous yet you’d never know that from James as he never complains.

James is now in Palliative care at home with his family (Mum, Dad & 2 brothers) beside him. In the coming year the family will need counselling support (this is not funded by anyone and his very costly), financial support to pay the mortgage and bills allowing James Dad & whole family to spend precious moments with James while they can.

We also have funeral expenses approaching us. We have funds to cover this from previous fundraisers (https://givealittle.co.nz/cause/bucketlist4james) but we want to celebrate James with a party all children deserve. This will be no traditional send off and we dearly ask for your help to make this happen when the time comes.

Before James became sick we were a 2 income family who had just purchased our house. Your donations are so much appreciated it’s to truly acknowledge how much they help xxx

We have had and still have the most amazing supporters in this devastating journey and thank you all for your continued support.