Supporting Stacey and her family through Trigeminal Neuralgia

$45,511 of $45,000 goal
Given by 1234 generous donors in 13 weeks

Please help Stacey & her family so she can get the surgery and/or treatment she needs to fight Trigeminal Neuralgia

Otago

***Update 4/6 - Stacey will be getting an MRI on the 17th of June. From there she will get an appointment with the neurosurgeon. Surgery is not yet confirmed. Please see the use of funds & page updates below for more information on what funds are to be used for.***

Imagine living your life one minute and the next minute you are in the most excruciating pain know to humanity? That’s what happened to Stacey, the once fit F45 lover, wife and mum of 6 kids. To now be crippled by pain unable to do anything but lie there with her hot wheat-bag trying to make it through another day of unbearable pain. The options are go through this pain while hoping the medication used for epilepsy works to live a semi normal life or raise enough money ($45,000) to fly her up to Christchurch to be operated on by a TN specialist and give her the best opportunity to live a normal life and be a Mum and wife again, also fulfill her dream of becoming a midwife this we will know more once she has had her MRI & appointment with the neurolo. The money raised will be used for the costs involved with any specialist, surgery, travel & medical costs not covered by the public system.

If surgery doesn’t go ahead Stacey will be looking into other treatment options such as

Stereotactic radiosurgery

Or Balloon compression

There are other non surgical options such as regular Botox.

“Stacey has chosen to go private surgery so she can have a neurosurgeon who has a great reputation for MVD and get it done faster so she can get her life back”

Any left over funds Stacey will donate to a charity if her choice.

Stacey is always the first to think of others and help others, she is still thinking of others while going through the hell of constant pain.

Please help us help Stacey, every little cent helps.

Leanne Upfold's involvement (page creator)

Stacey is my best friend, we gym together, do family outings & holidays together, she is the sister I never had. Not a day goes by we dont talk to each other.

Use of funds

For specialist, surgery, any medical bills & travel expenses, also to help with the children & any other costs that occur during this time.

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Latest update

Update image

Discharged   15 June 2022

Posted by: Stacey Welsh

Yesterday I had my final check in with my surgeon (who is absolutely incredible). He is super happy with the success of surgery and recovery. Now 5months post Microvascular decompression and I’ve not had any pain at all, I’ve been off medication since 2weeks post op. My surgeon is confident that the surgery is 98% effective for life, he explained that having surgery early in diagnosis means the nerve isn’t damaged and full normality can be achieved. I can’t put into words how grateful I am to have my life back, it’s been one year since Trigeminal neuralgia appeared out of nowhere, I could not and most likely would not have had surgery through the public system as my MRI didn’t show a compression, I would still be popping pills and in a terrible state. I never take a pain free day for granted, I live life to the fullest, I’m chasing my dreams and have all of your to thank for the rest of my days 🥹 it’s my 35 birthday today and I was able to celebrate unlike last year, my family are well and I’m enjoying the very busy life of studying.

Here are some photos my surgeon sent me of my venous compression and the process of dissection and sponge/glue placement.

My scar I’m very proud of, my surgeon did an amazing job.

And my notes from surgery and diagnosis.

Oh and me in my scrubs on a shift for my degree (that I would not have been able to do without surgery)

Thank you again for your kind and generous donations that have truly changed my life.

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Latest donations

Guest Donor
Guest Donor on 19 Aug 2021
$2,000
Kim
Kim on 19 Jul 2021
I am in AKL and was diagnosed with this condition in April. Like you I am waiting on specialist appointment (October) and meantime on Epilepsy drugs - my MRI is tomorrow. Unlike you I am 53 with no children at home. I can understand just how hard this is on you and your family 🙏🙏
$100
Guest Donor
Guest Donor on 08 Jul 2021
$20
Paul
Paul on 24 Jun 2021
Paul Archbold... all the very best team 💪🏽
$125
Gina
Gina on 23 Jun 2021
Wishing you all the best Stacey
$10

Who's involved?

Leanne Upfold's avatar
Created by Leanne Upfold
Stacey Welsh's avatar
Paying to a verified bank account of Stacey Welsh
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This page was created on 31 May 2021 and closed on 30 Aug 2021.