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Survived half of my life, trapped in Domestic Violence, only to find out I have Cancer. I NEED YOUR HELP PLEASE x

  • 17.09.2020      18 September 2020
    Posted by: Natalie Jones
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    17.09.2030

    Home after another operation. Was to stay 1 night at Middlemore (murdermore,). That was last Thursday, just got home yesterday evening.

    Had a awesome roommate

    But apart from that it was a horrific stay, it's because of these kind of admissions, that I will only go there if things are really bad.. because I feel like I'm being tortured. E.G it took until the day before I left to get my meds right. So my basic pain not being managed, plus a feeding tube in abdomen replacement, as it was only designed to be temporary, 5 months later, the tube and it's pathway are infected, scar tissue removed, and stretched. All this extra pain, and not even getting the basics..

    Not really the nurse's fault, and I always ask for Ward 9, as their nurses are the best...

    ONCE AGAIN I'M ASKING MY FACEBOOK ETC FRIENDS TO "SHARE" MY GIVEALITTLE PAGE. IF YOU COULD WRITE HOW YOU KNOW ME , A MEMORY ETC... IT WOULD BE VERY MUCH APPRECIATED X0X

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  • Update 02.05.2020     2 May 2020
    Posted by: Natalie Jones

    Firstly I hope you are well and staying safe.

    I'm so sorry I have been AWOL, nothing personal at all. I truly appreciate your love and support. There are no words to Express my gratitude xx

    This has been a rough ride. I find texting hard, and talking painful. I have been on extremely strong medications. I find it hard to concentrate, constantly have the shakes... the Phenomena took its toll, and I have a lung with part deflation and fluid build up that is extremely painful.

    I am healing slowly from the surgery...

    Even writing this has taken me over half an hour.

    Please bear with me, if I can't respond.

    Love Natalie

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  • Fighting With Everything I Have     12 April 2020
    Posted by: Natalie Jones
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    Things happened so fast........

    Monday 6th Surgery in HDU

    Wednesday 8th Moved to ICU, Developed Phenomena, very sick...

    I KNOW THINGS ARE THOUGHT ON A LOT OF PEOPLE... AND MY PRAYERS GO OUT TO YOU ALL.

    P.S Happy Easter x

    FIGHTING IN HOSPITAL ALONE. IS SOMETHING I WOULDN'T WISH ON ANYONE...

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  • 3rd April 2020 Operation booked for this Monday, all day     3 April 2020
    Posted by: Natalie Jones

    Update 3rd April 2020

    So my last biopsy results came in and have pushed the doctors to act fast.

    So on Monday the 6th. 3 days away, I will have my stomach, part esophagus, glands and lymph nodes removed.

    I will be in ICU or hdu for up to 1 week....

    All prayers accepted, I am scared, this is a huge operation...

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  • 30th march 2020, hospital life during quarantine      30 March 2020
    Posted by: Natalie Jones
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    So firstly everyone stay safe, thank you for your support xx

    In Middlemore there are none of the below.

    •NO VISITORS AT ALL

    •NO LEAVING OUR ROOMS

    •NO FOOD FOR PATIENTS TO COME INTO HOSPITAL

    •NO WASHING CAN BE DONE

    OH AND THE BIG ONE, DUE TO THE PANDEMIC ALERT 4, MY SURGERY IS NOT HAPPENING ON THE 6TH APRIL, COULD BE A FEW MONTHS NOW AS I'VE BERN TOLD ILL NEED TO BE IN ICU FOR UP TO 2 WEEKS, AFTER SUCH A BIG SURGERY. HAVE TO STAY HERE AS IM BEING FED INTRAVENOUSLY TO BE READY FOR SURGERY...

    I'M SCARED, IT CAN KEEP SPREADING, AS WE ALREADY PASSED THE CHEMO WINDOW OF 6 WEEKS TO HAVE OP DONE..

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  • Stuck in Middlemore since 6th March, Big Surgery on the 6th April     18 March 2020
    Posted by: Natalie Jones
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    Unfortunately I am deconditioning to rapidly, so chemotherapy has been stopped, and I have been in Middlemore since 6th March. Surgery to remove my stomach and part of my esophagus is booked for 6th April....

    To be honest my time in hospital has been a trainwreck so far.. And I will be here for a few months more..

    I am trying to stay strong, but it is not easy. This surgery is going to be life changing, as it will take everything I have to get through it and recover, to then also have another six rounds of chemotherapy.

    I am immune suppresed so have to be careful... in a room alone, due to my immune systems current state.

    Thank you to everyone for well wishes and support. Please stay safe with all thats going on xx

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  • Chemotherapy on the 23rd February 2020     23 February 2020
    Posted by: Natalie Jones
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    Chemo has been really tough, and its triggering my nausea, can't eat, hardly keep food in. In 1 round of chemo lost 7kgs, not good. Due to this they might have to bring surgery forward, just thinking of having my stomach removed and part of my esophagus is petrifying... 😟😭🤢🤬

    as they will be attaching my immobile esophagus to my small bowel, and I have a large bowel that no longer works.. so my quality of life is going to be bad....

    Oh and as my hair is falling out... I had to get my hair off. I now have a no 5..... this was a huge blow...

    IM SCARED, BROKEN AND HURTING ON THE OUTSIDE AND INSIDE....

    CHRONIC PTSD, FROM YEARS OF SUFFERING AT ANOTHERS HANDS WAS DEBILITATING ENOUGH, BUT PUTTING CANCER ON TOP OF THIS IS SOOOOOOO HARD.

    I AM FINANCIALLY WIPED OUT

    I AM MENTALLY WIPED OUT

    I AM PHYSICALLY SUFFERING

    I AM SCARED, IM SICK OF BEING SCARED....

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  • 1st round of chemo yesterday     11 February 2020
    Posted by: Natalie Jones
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    THE BEGINNING OF A LONG LONG JOURNEY...... REALITY SET IN YESTERDAY.

    Just talking to people there is so much I need to buy, and WINZ is useless.

    Yesterday was a lot...

    I thought it would be somewhat tranquil or peaceful.. but I was VERY VERY wrong. It was so noisey.

    With each new medication pumped into me, I would get strange sensations or feelings. And then I also take another chemo medication home with me, that comes out this evening. It's still attached to me and I have to carry a belt bag with it on me. Sleeping last night was a nightmare.

    Feel like I've been hit by a big truck.

    Thank you all for love, good wishes and support xx I won't lie it was a lot and there is still going to be more, had it at home for last night and go into pukekohe hospital this afternoon to get it out.

    To be honest this is so much more than I imagined....

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  • Getting ready for Chemo - Hair cut     7 February 2020
    Posted by: Natalie Jones
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    My story update Fri 7th Feb 20

    So my long hair is gone, in about 10 days, I'll need to get a no 3, not sure yet.

    But wow it's definitely an emotional experience. Miss you mum at times like this

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  • And the journey officially starts..     5 February 2020
    Posted by: Natalie Jones
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    Thank you to everyone who has reached out in anyway, with support and love.. it is much appreciated.

    AS OF TODAY MY JOURNEY THROUGH CHEMO, SURGERY, CHEMO STARTS.

    FIRST STEP PORTACATH INSERTION DONE TODAY. PAIN KILLERS WEARING OFF.. IT WAS SCARY.

    NOW CHEMO ON THE 10TH MONDAY.

    CUTTING MY HAIR OFF FRIDAY, THIS IS GOING TO UPSET ME, BUT HAS TO BE DONE.. oh and a wig costs between about $400 - $2000 and that's for synthetic hair. They say within 1 week my hair will start to fall out..

    A lot happening so suddenly, my brain is still trying to catch up.

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  • Starting Chemotherapy on the 10th February 2020     2 February 2020
    Posted by: Natalie Jones

    Update:

    So I have been accepted on the emergancy wait list and all of a sudden I'm starting Chemotherapy in 8 days....

    Next week alone I have 7 appointments in 5 days from Auckland Hospital to Middlemore Hospital to the super clinic and even Pukekohe Hospital.

    So main ones next week

    Monday: Meet oncologists to have in depth chemo discussion, blood tests etc.

    Wednesday: Chemotherapy Port put into my chest

    Things just keep moving so fast. You just get your head around one thing and bam, its in your face.

    GOING TO HAVE TO CHOP MY LONG HAIR OFF IN THE NEXT 6 DAYS, IM GOING TO TRY AND BE BRAVE....

    TRYING TO FIND CHEMO HEAD COVERS WITH NO NOTICE IS IMPOSSIBLE, LOOKING FOR SCARVES AND CHEMO COTTON HATS, ANY SUGGESTIONS WOULD BE MUCH APPRECIATED.

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  • Chemotherapy Meeting     27 January 2020
    Posted by: Natalie Jones

    So as there is a delay currently with starting the chemotherapy process, this begins with a meeting with 2 oncologists. I received a letter for the 12th Fed, but was put on the emergency wait list.

    On the 21st Tuesday I received a phone call to come in today.

    Went through everything treatment plan, process, side affects etc.

    I will be starting FLOT chemotherapy, this runs for 46 hours, I go in for a few hours and then take the machine home to run, and have the district nurse disconnect it. This chemotherapy is very tough... This is every second week for 3 months, if my body tolerates it.

    Then surgery to remove my stomach and part of the esophagus lymph nodes etc.

    It has been found in the junture where your stomach joins the esophagus. I have already lost the muscles in my esophagus.

    The current diagnosis is:

    Diffuse Gastricesopageal Adnocarcinoma Cancer.

    I am slowly realizing how much hell I'm about to go through... and for very low survival statistics.

    PLEASE SHARE MY STORY TO GET MY CRY FOR HELP HEARD. I NEED HELP, DONATIONS AND SHARES TO GET MY STORY OUT!! (that you can do straight from my GIVEALITTLE page). THANK YOU TO THOSE WHO HAVE HELPED.

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  • Update     20 January 2020
    Posted by: Natalie Jones
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    FIRSTLY THANK YOU TO ALL THE KIND SOULS WHO HAVE DONATED, PRAYED, OFFERD SUPPORT, OR SHARED MY GIVEALITTLE PAGE xx

    MONDAY MEETING

    (My doctor was away, so fill in doctor)

    Basicly another long drive to Middlemore plus parking for things that could have been said over the phone.

    So far they have found, and now tested twice via biopsy, that there is cancer exactly where your esophagus joins the stomach, meaning it is both esophageal cancer and the source is the stomach cancer. Both biopsys show it to be stomach cancer. The diffuse in the title means it is the aggressive, spreading type of cancer.

    CURRENT TREATMENT PLAN.

    3 x rounds of chemotherapy, that takes about 3 months. (SCARED)

    Then another round of testing. If it is not still spreading, and chemo seems to be working, they will then remove my stomach and part of my esophagus. (VERY SCARED)

    Then another 3 x rounds of chemotherapy, that takes about 3 months. (SCARED)

    Oh and they say they can't stage it until they remove the stomach.

    If after the first round of chemo it is not working how the doctors would like, they will not operate, and it would be terminal with treatment stopped. (Speechless)

    For someone with PTSD it's extra tough, all these people flying at you.. Strangers talking about your life.

    It's been non stop, either appointments or home visits, the travel is killing me financially and this is just the start.

    They told me on the 13th Jan that there is a 1 month wait for Auckland Hospital chemotherapy to meet and then start.

    Just got a appointment letter today 12th Feb.

    All these delays are frustrating and scary, when your told its aggressive... HOW CAN WE LET PEOPLE LIKE ME WAIT AND WAIT AND WAIT.

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  • Family Hospital Meeting     10 January 2020
    Posted by: Natalie Jones

    Hi to some amazing people... who have donated, thank you x

    My appointment today with my family to find out everything has been cancelled, until Monday, as the specialist had a family emergancy.

    All my cancer specialist could tell me is I will be having chemo (4 rounds with 6 treatments in each round). This can take 2.5 months. Then they wait 2 weeks, and I will then have major surgery, part of my esophagus, stomach, lymph nodes etc removed, then it's 3months to a year to recover, and then the same cycle if chemo..

    Chemo can only be done at Auckland hospital, and I will be living at home while I have the chemo. THATS 68.3 KM EACH WAY. PLUS PARKING. THIS IS WHY I NEED YOUR HELP WITH DONATIONS.. I HATE TO ASK, BUT I NEED HELP PLEASE..

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