The right to quality of life

David Scott McKenzie (Scott) was diagnosed with motor neron disease at the end of 2022. Since that time he has seen a rapid loss of muscle and function to where he is now permanently in a wheelchair and requires a hoist to move him in and out of bed. He is in constant pain and therefore is on strong painkillers to cope with that. He recently underwent crucial surgery for a stoma bag which he had to pay for privately as it was deemed elective surgery. Their reason for this was that although he is terminal, this isn't seen as critical, even though if he doesn't get this procedure done now he runs the risk of complications later, which he might not survive. I ask if you would consider donating to help cover some of the cost of this surgery which is already coming in well above what was quoted. As well he had to pay for his bathroom re-fit as local DHB stuffed up both timing and funding that he was eligible for and that is too long a story to put on here! Scott is a private person and wouldn't ask for support so I am asking on his behalf. This is about quality of life.