To help summers quality of life

Kia ora, and thank you for being here.

Asking for help has been incredibly hard, but I’ve reached a point where I have to accept support. Every past donation has gone to scans, specialist appointments, and treatments and I’m forever grateful. It’s what’s helped me keep going.

I live with Ehlers-Danlos Syndrome, a painful genetic disorder that affects nearly every part of my body including joints, skin, organs, and blood vessels. I also have complex co-conditions, including:

• POTS, which causes frequent fainting and dangerously low blood pressures such as 70/42 ( normal is 120/80)

• Gastroparesis and abdominal compressions, leading to daily vomiting, nausea, and severe pain

• Extreme fatigue, leaving me mostly housebound and or on bad days bedridden

I have to give myself 3 anti nausea injections just to manage some oral intake and not vomit as much. I do often require IV fluids, but accessing the right care through the public system is an ongoing battle. I can’t work or study or do things in life that make it meaningful it’s so soul-crushing

I’m doing all I can, but I can’t do it alone. Donations will help me access medical care I need but can’t get publicly.

If you’re unable to give, that’s okay—thank you for simply being here.

Your support helps me feel seen, supported, and not forgotten.

With all my heart,

Summer