Help 3yo Tobi with his Brain tumour fight
Tobi is a sweet little 3 year old who had a brain tumor diagnosed on the 10th of March 2017.
Wellington
Tobi was diagnosed with a brain tumor on the 10th March 2017. He was flown by Life Flight Trust from Wellington to Christchurch that night with his mum, with his brother and step father following later that night. He has lost 4kg since becoming unwell, not really able to mobilize anymore or talk well.
Tobi has already undergone MRIs and surgery. We are waiting for the final results but he will need to undergo some form of chemo or radiation therapy along with rehabilitation. We are hoping he will be back in Wellington in a few weeks but that all depends on the outcomes. His family are staying currently at the Ronald McDonald House in Christchurch.
Teresa Kent's involvement (page creator)
We are involved as a family supporting our family in any way we can xx
Use of funds
Funds will be used for his family to get to and from treatment and rehab and hospital appointments once back in Wellington (or in Auckland if it happens that way), for food while they are staying away from home and any modifications that may be needed in the future to make his life as easy as possible so he can continue to grow as any little 3 year old should be able.
Latest update
6 months post treatment 26 May 2018
6 months after finishing treatment Tobis hair has grown back slowly but its thick, full and curly!
His 2nd post MRI was clear!
He has started his re-immunization schedule (treatment wipes all immunity including past immunizations)
He is building confidence and beginning to try knew adventurous things in the playground.
Tobi is involved with lots of different child development services now.
We still have a lot of trouble with emotional breakdowns or tantrums, talking and communication, his balance, his appetite and low immunity to everyday bugs.
We are currently saving for a car as attending frequent hospital appointments has become expensive and alot harder in the cold months with having to catch a train and 2 buses (that's only one way)
Tobi is currently on a 1 month trial of being tube free. His weight has stayed at a pretty consistent 16kgs for the last few months so we are seeing if we can maintain it through a fatty diet and lots of extra calories from things like up & go drinks.
And seeing as Tobi is tube free, we are looking at doing Swim Therapy sessions for him to help with muscle strength.
Latest donations
Thank you so much for your kind and generous gift. We really appreciate the support.
Every little bit helps! Thank you very much for your kindness & generosity. Love from our family to yours xx
Thank you do much for your kind generous gift. We thought it was unfair of tobi to have to go through it without a choice.. so we did it too! Thank you for all your support & love. With love & appreciation from our family to yours
Thank you very much for your kind and generous gift. Our family appreciates it a lot. With love from our family to you xx
Who's involved?
Page Q&A
Ask a question hereAny concerns?
Report this pageThank the donor
Your message will be displayed on the page and emailed to the donor.
Your new message will also be emailed to the donor.
Saving a blank entry will delete the current comment.