Together lets help our little man pull thru...

Right back from my pregnancy i had 15wks of severe hyper emersis, everyone was try this and that, its normal, it led to multiple hospital admissions, hubby was having to take time off work to watch our other 5 children (3 of which have special needs and our now 2yr old had 32 ear infections before he had his first set of grommets, yet to undergo her 3rd permanent set), thou we kept chugging along after all, dad got his longed for last boy and his big brother (Preston - aged 9) got his baby brother, i still hear the cheering when we had our baby shower as we sliced into our baby shower cake, as the pregnancy came to an end, as i went into labour Tyson had our work cut out for us, labour stopped and started 3 times (contractions 3-5 minutes apart, everytime),

Birthing at Waikato and then off to the River Ridge, everyone kept saying aw hes making cute little baby sounds (grunting), midwifes kept coming in and out of our room, kept checking his obs, the only time he was quiet was when he was asleep on me, then the midwife said im just guna ring the paed. team at the hospital they may just want to a 2nd set of eyes over him, (all obs were fine overnight), then that she would pop back and let me know what theyd said as i requested, i rung my husband saying i think you need to come over quick, next i got a text message from my midwife saying she would come see us later, after replying thinking yip okay, i heard sirens, seconds later an ambulance was outside our rooms window, i thought oh must be a birth, next they barged in our room putting Tyson in his carseat ready to leave the room, in shock, the midwife walked in saying your just going to the paed. clinic, you will be back shortly, see you in a couple of hours, leave your room as is, as she did another set of obs, next we were in the ambulance hubby followed, the ambulance was hoofing it, trying to stay calm, we then arrived in NICU thinking why are we here, he was then taken from us for 36 hours we were no longer allowed to hold our boy, he had severe respiratory distress and low sodium (required CPAP), i bawled my eyes out there was nothing we could do, we were helpless, as parents came and left, we were at Tysons side 24/7 for the 7 days we were there, towards the end of those 7 days he had grade 5 lip tie and grade 4 tongue tie NICU said he was loosing weight, they referred us to their lactation consultant there lactation consultant said it was too advanced for her to snip, next morning we paid to have it lasered and what a miraculous difference that made, in two days we were home going wow what a ride, little did we know his ride wasnt over yet,

Since hes had 17+ ear infections, ongoing respiratory conditions including pnemonia in May, chronic constipation lead to a biopsy and botox injection querying hirshsprungs disease, he doesnt have nerves in his bowel he has gladuela cells, requiring medication and possible surgery as he gets older, delayed gross motor skills and mild global developmental delay,

Hes been tested for caeliac disease - negative, QR8 detected,

Thru all this hubbys boss aint happy, hes been threatened to be dismissed but what more does one do, i feel after 15mths+ of this a family holiday seems a dream, something we have never done, today being hubby and i's 14th year Anniversary,

Currently we are in hospital querying a nasty virus (high temps, high heart rate, pale, lethargic, vomitting, lost 400g (never been over or below 9-10kg), now constipated and not wanting to feed, photo taken today, we have gone thru a private allergy clinic specialist for him etc etc

I too have to be careful with my health having Sarcoidosis and a lung & cardaic conditions, however being that pro active mum i will stick by my children thru hell and back,

I didnt want to make this page however close friends have talked me into it,

Please feel free to share, i just want people to know you too aint alone xx