Toni's Tarlov Cyst Disease
My mum has a rare disease called Tarlov Cyst Disease. This disease has caused lesions of spinal fluid in the nerve roots. Her symptoms are
Nationwide
The surgery needed cannot be performed in New Zealand. If she doesn’t get this done she could end up permanently in a wheelchair.
I have watched this disease torture my mum for 22 months; she cries alot from her daily pain, basic daily activities are difficult and she struggles looking after the younger children.
Please help her get treatment
Latest update
Update for 15/08/2014 15 August 2014
i can only dream of the day that i can have my life back, fund raising has stalled, lifes getting rather challenging, the longer this is left untreated the more my nerves are being damaged, and more of my sacrum bone is eroding away. i try to be positive but the weight of daily chronic pain is heavy to carry mentally and physically
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