TSW Treatment to get my life back

Hi Grace- please may I ask that you contact me as to any progress of your treatment as my son..33 years.. has the same condition as you.. just as severe-mainly starting when he was a teenager.. he hates to shower and feels pain all the time- he has had to give up his job and stays near a cold fan most of the time in his bedroom..we are desperate to help him but have run out of options having seen doctors and specialists for years.. I pray for a good outcome for you but pls contact me occasionally on any progress or ideas. thankyou..Clive