TSW Treatment to get my life back

$22,555 of $20,000 goal
Given by 311 generous donors in around 11 months

Help Grace receive treatment to get her life back!

Papamoa Beach, Papamoa

Dear family and friends

Or for those who don't know me I am Grace and I am going through Topical Steroid Withdrawal (TSW). TSW is a horrific iatrogenic condition, meaning it is caused by medical treatment.

Put simply TSW is a drug withdrawal unlike any other.

For more information please head to www.itsan.org

Daily I suffer with burning skin, a bone-deep itch, oozing, crusting, nerve pain, and inflamed redness, after using steroids as prescribed by doctors and dermatologists for eczema, for 22 years.

The creams were not working, so I was prescribed stronger ones. Eventually they stopped working and I was prescribed oral steroids and after those failed to work I started to do some research. In 2020 I discovered that I had Topical Steroid Addiction (TSA) so I quit all steroids; both topical and oral. I have been suffering from TSW for 3 years in the hope that my body will recover from the damage. I have tried every diet, non-steroidal cream, light therapy, gut repair, supplement, herb, and naturopath available in NZ.

I have become so unwell that I struggle to work and don't have much of a life outside of it. I try to sleep to help me heal, but I have not had a comfortable full nights sleep in 3 years.

So, I am raising funds to go to Thailand where I can receive Cold Atmospheric Plasma (CAP) treatment. This is proving very successful for TSW sufferers.

I would live in Thailand for 4-6 months and receive excellent care at every stage of the healing process from Jay at The CAP Clinic.

Use of funds

Funds will be used towards flights, accommodation, and treatment costs.

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Latest update

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Update - Post CAP Treatment   17 April 2024

Hi everyone!

I will try keep this short...

I have now been back from Bangkok for about 5 weeks.

There was a lot of anxiety leaving the safety of the machine, the great team at the clinic and the knowledge and support from Jay (clinic director).

However, I am stoked to say (aside from an eczema herpeticum infection a couple of weeks ago) I am doing extremely well!

I still have approximately 6 years of withdrawal to get through, but I now have the best knowledge for how to get through this.

I can absolutely say I would not be where I am today without the support of all of you who donated to help get me to Bangkok for treatment and for that I will be eternally grateful.

Grace McMillan (yes we got married!!!)

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Latest donations

Susan
Susan on 06 Feb 2024
Best wishes Grace, I am Rachel Lauders mum - I was so dismayed to see what you have gone through - there will be light at the end of the tunnel - good on you for going for it 👍
$150
Grace Beeby

Thank you so much Susan. After a not so great day yesterday you have made my week. Thank you so much. X

Grace Beeby
Sarah and Brendon
Sarah and Brendon on 13 Nov 2023
Hope its all going well for you Grace. Sarah and Brendon :)
$100
Grace Beeby

Thank you so much Sarah and Brendon! Hope all is well back home. X

Grace Beeby
Guest Donor
Guest Donor on 28 Oct 2023
Glad to help towards your recovery
Private
Grace Beeby

Thank you so so so much! Your very kind donation will go very far! X

Grace Beeby
Judith
Judith on 22 Sep 2023
Heard about you from Pat and Kathy Grace, sister of Mrs Brown! May you get a good outcome ☀️
$40
Grace Beeby

Thank you so much Judith! You are very kind. X

Grace Beeby
Maree
Maree on 08 Sep 2023
Sending you love, light and healing prayers 💜🕯️🙏 You've got this 👍
Private
Grace Beeby

Thank you so much Maree!!! X

Grace Beeby

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Grace Beeby's avatar
Created by, and paying to a verified bank account of, Grace Beeby
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This campaign started on 26 Jun 2023 and ends on 26 Jun 2024.