WE HAVE MOTOR NEURONS DISEASE DIAGNOSIS :-(

Hey everyone

I have a heavy heart, I can't breathe , I'm frightened.

Our world has been totally tipped upside down. My husband has officially been diagnosed with MND "Motor neurons disease" a cruel hopeless terrifying illness that has little to no treatment .. ie .no hope . Which brings us here to hopefully Regain a little hope in our very uncertain future. We currently go live on tiktok daily! username: 'mummamiaxo' so many of you have suggested we do a fundraiser to hopefully forfill some family dreams as so many have been shattered:-( Chris can no longer walk unaided. His left arm is now not working well . This disease is progressive and devastating. Mumma is no longer working to care for Chris. Slowly working through the system for any funding is difficult but we are thankful for possible future care we hope to receive.

I feel inadequate as a wife, a mother and to my community asking for help. But this is about doing everything I can for my husband and family with the few things we do have control over as this disease takes our control away which is scary!

We would love to make dad's dreams come true! We would love to be Able to provide him with a new mattress. A chair . Some rails. Some shoes. Some comfortable pants. I would love to take him on a plane to Auckland before he gets worse as we have never been on a plane together in our 20 years together. Thank you for supporting us. I really have shame and embarrassment as I usually like to help others. Much love team.