I have CRPS and need help to cover medical expenses, acquiring a new wheelchair and modifications to our home.

$8,775 of $50,000 goal
Given by 22 generous donors in around 6 months

Please donate to help me with my mounting medical expenses, new wheelchair and home modifications.

I have Complex regional pain syndrome. This is a debilitating disorder that causes me to be in pain 24 hours a day. I tore my ACL playing indoor netball 8 years ago and after the first surgery developed Complex Regional Pain syndrome when a nerve was damaged during surgery. I am now dependent on a walker and a wheelchair as the disease has spread to both my legs, my cardiovascular system and upper left limbs. My walker has become very difficult to navigate as my legs gives way without warning. I have spent all but 167 days in hospital and in a care facility since May last year. We have to self-fund part of the care facility stay. Unfortunately, I have just been informed that I have to leave the care facility on the 1st of August as my funding has run out and that my new wheelchair that will help me be more mobile and independent will not be funded. I have to return home before the safe access modifications to our home will be done. We still have no guarantee that the full modifications will be covered. The unfunded cost of stay hit us hard financially as well as having to now fund the wheelchair ourselves. We also need to pay for Ketamine, as no other medications are working for my pain as well as 2 cycles of antibiotic at around $800 each cycle. The past year has taken a massive mental and financial toll on her and us as a family. I just want to get better, be mobile to be able to enjoy family life and get the modifications done to be safe at home.

Use of funds

Updated on 8/10 - Treatment at the Spiro Clinic in Arkansas USA that specializes in my condition.

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Medical expenses (care facility, Ketamine, antibiotics), wheelchair and home modifications

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Latest update

My situation has changed drastically.   1 October 2024

Unfortunately, my condition has deteriorated. On top of that, my husband has been made redundant. My complex medical needs have reached a point where I have limited options of treatment in New Zealand. I have been advised to have treatment at the Spiro Clinic in Arkansas USA that specializes in my condition. My aim is to reach my initial goal and to set a goal to travel to the USA to receive the specialist care I need.

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Latest donations

Rob
Rob on 22 Aug 2024
glad to help Rob Smith, Rotary.
$500
Willem
Willem on 29 Jul 2024
$100
Renate Marie Schaefer

Thank you so much for your donation. Your help means so much to us.

Renate Marie Schaefer
Rhonda
Rhonda on 29 Jul 2024
Wishing you the best in your care, as you return home.
$1,500
Kelly
Kelly on 26 Jul 2024
So gutted you are going through this in the first place but to have so much extra stress and frustration because of our health system/ACC added on top is so incredibly unfair. I hope you can raise what you need to allow you to move on with your life and that the authorities step up and do their part in all this xx
$100
Glenn
Glenn on 22 Jul 2024
$100
Renate Marie Schaefer

Thank you so much for your donation. Your help means so much to us.

Renate Marie Schaefer

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This campaign started on 5 Jul 2024 and ended on 1 Jan 2025.