Support my sons journey while he fights to get healthy again

Home time

20 June 2024

My son is now home :)

He still has a long way to go but the IST treatment is working, his bone marrow is slowly regenerating, his blood counts are coming up slowly.

He’s aloud to go back to school in the next term which he is very excited about :)

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21/06/2024 by Ang

Ang Glynn here from Whakatane. No doubt you wont be able to remember names but Estelle and I met you through cosmetic clinic lazer treatments. Love this progress for your family Sharene. You guys have been through the wringer and your boy is still smiling. Enjoy home and everything about the comfort of family and friends 🧡
23/06/2024 by Barbara

I'm soo glad to hear your progress has reached the point of returning home. Best wishes and much alofa from Palmy nth xo 🇹🇰
support https://www.malaghan.org.nz/

Te Waarakihi’s life update 🤍

21 April 2024

We are in week 10 now.

This is the 6th week on my boys immune suppression therapy. It’s so early to tell whether or not this treatment is working but so far he is needing less platelet transfusions (he’s down to 3 a week) and needing red blood cells very 2 weeks.

We have been bouncing between starship and the Ronald McDonald house while my sons undergoing treatments.

Sadly last week his kidneys and liver have started to function at a very high rate, we are currently in starship hospital again while the doctors figure out the next steps.

Thank you to every single person who has donated, signed up to the bone marrow registry and reached out! We have been receiving so many messages wishing my boy well and I have read every one of them to him, they have brought us to tears on many occasions. We really appreciate this beautiful community of people backing us 🤍

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21/06/2024 by Amy

This is wonderful news Te Waarakihi. Evie is super excited to see you back at school!