Help Mia with her journey to getting new ears and her other health conditions and needs xx
Taranaki
My 20 month old daughter Mia-Rose is having bilateral cochlear implant surgery on the 28th of April 2016 in christchurch through the southern cochlear implant programme also known as SKIP. Mia-Rose and her twin Tayah-Jane were born at 24 weeks in July 2014 as a result of her premature birth Mia gained Hydrocephalus (water on the brain) and required a shunt to be placed in her brain to drain the excess fluid to stomach to reabsorb back into her body. Then not long after her shunt being put in we discovered Mia could not hear. After further testing and many appts to determine how severe the hearing loss is Mia was diagnosed with having severe to profound hearing loss it was later changed to mild to severe hearing loss BUT Mia was also diagnosed with Auditory Neuropathy Spectrum Disorder meaning that the nerve going from her ears to her brain is not working properly it's either delayed or she hears static noise and this is a rare condition and also a very confusing form of hearing loss so she was accepted to have cochlear implants put in. Mia's shunt is magnetic which means she can't be around magnets or else it could affect her shunt so with putting the implants in it has the potential to cause problems with her shunt but this opportunity is to good to pass. So because of mia's individual circumstance and the fact that she has a twin sister who needs to be with her for the surgery I am raising funds to help support and take the pressure off us while we go through this experience. Mia's implants are government funded and travel and accommodation is also but anything else we may need isn't
I'm involved because I am mia's mother and sole carer of her
Not long to go now xx 10 April 2016
Surgery day is coming up very quickly now, scary it's strange looking at my little girl and thinking the next few weeks will be the last time I see her without anything on her head xx
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