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The Lockley Family home is full of Love, its also full of Tumors

  • Paetyn’s Surgery - Thursday June 20th

      19 June 2024

    Paetyn is having a wee break from his chemotherapy treatment until after surgery. This is to give his body and tumour removal the best chance in healing and recovery from his major surgery which is booked for this Thursday June 20th at 8am. We are all beyond nervous. Please hold him in your thoughts and send any positive vibes, prayers and energy you can. We are trying to prepare the house for his arrival home and the modifications he may need. Nothing is quite going to plan but that is life. Occupational therapist have dropped off his wheelchair at least. Paetyn is as always a man of little words but seems in ok spirits. This is greatly helped by how supportive his workplace has been. I will forever be greatful to them and how they have positivley supported him in this and his desire to be successful despite all the obstacles and reasons to add to the 'to hard basket'. Thank you to all of you who have supported us and paetyn this far and those who continue to do so.

    Unfortunately we don't get completion or end dates. This is a continuous vicious cycle of life and health altercations with the family genetics.

    (Message written from Leisha Lockley - Mum)

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  • This precious cargo is a month supply of Chemo which you have all helped supply

      30 April 2024
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    Early morning delivery today... another month of chemotherapy...

    Thank you everyone who has shared our page, shared our news article, donated and kept us in your thoughts. Treatment and access to this drug would not be possible without all of you. Paetyn is struggling but still pushes a positive mindset. Our oncologist has sent a NIPA request to pharmac which a previous oncologists application was denied. We will continue to do all we can to access this medication. Paetyn will be undergoing a high risk surgery which we need to prepare for as well as continuing chemotherapy treatment.

    Thank you again

    Leisha Lockley(Mum)

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  • Keeping you in the loop on the "Use of Funds"

      10 April 2024

    Hi everyone, When this page was orginally set up the "use of funds" were all going to Paetyn's Chemotherpy Drug Tranitinib, which cost $5000 per month. Sadly Paetyn has had to lower his Chemo drug as his body can not cope with the previous dose. Therefore lowering his dose lowers the cost of this drug. At this stage the approximate cost is $2500 per month. Surgery is in the very near future for Paetyn. With this comes many challenges & needs for the family on how to accommodate Paetyn with the very real risk of the loss of the use of his leg, There has also been another sad outcome within the family as Tumors have now been found in Paetyn's little brother's body, As you can understand the Lockley Family are going through a massive amount of emotional pain & stress. All funds now raised will be used for within the family. There is a more in-depth explanation of expenses that will be updated under the "use of funds' once processed by the Givealittle Team. Other changes are also the page heading & about info. It made sense to combine the whole Lockley Family Medical Journey into one Givealittle page. Thank you for your support & understanding in the latest changes.

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  • Surgery & continued Chemo for Paetyn

      22 February 2024

    Unfortunately the tumor has grown about 4mm. The good news is that the rate of growth has slowed down with chemotherapy. The bad news is that the neurosurgeon has told Paetyn that he should proceed with urgent surgery. There is so much to share in an update but very little room(says Paetyn’s mum)

    Paetyn’s surgeon has said he is quite concerned as Paetyn’s nerves are not healthy. He is now having to look at having to do a combined process of surgery and chemo...long term Chemo. Chemo is shattering him, physical pain, exhaustion, rashes, unable to sleep among so many other side effects. Surgery comes with a high level of risk. “Best case” is removing most and leaving the sheath to hopefully minimise sacrificing the nerve which would mean loss of function of a leg. “The middle case” is nerve damage needing rehab and possible lifelong nerve damage. “Worst case” complete loss of leg function and no recovery possible.

    At 22, these are heavy decisions and acutely affect Paetyn’s dreams & aspirations for his entire life. His life physically and emotionally, his work, his financial survival, his ability to work and pursue his job and climb that ladder. Everything feels so up in the air and heavy for Paetyn & his family. Long term Chemo is not possible without the give a little support, donations or any other fundraising.

    Thank you for taking the time to read this update.

    Your help & support is truly appreciated.

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  • From one month to the next… 5K is needed

      17 November 2023

    Treatment doesn’t stop for Christmas.

    There’s no break from this hard battle for Paetyn & his family.

    The massive “Five Thousand” a month for treatment on top of having a family Xmas will be so hard for the Lockley family.

    We are reaching out to businesses to ask for help.

    Do you have a business?

    Do your friends have a business?

    Would that business please be willing to donate an item or voucher towards a raffle(s)

    This donation, like all the previous ones would be so gratefully appreciated.

    If you would like to donate could you please contact

    Leisha(Paetyn’s mum) 021 2115505

    Or myself(Kylie) 0210545018

    The raffle(s) will be set up next Saturday Nov 25th at 20 Dermont st Hamilton where the Lockley family are holding another huge garage sale.

    All proceeds going towards treatment for Paetyn.

    The Lockley family would like to thank you for your support.

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  • Let’s help Paetyn receive another month of Chemo

      10 October 2023
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    GARAGE SALE - Do you have items laying around your home that you want to donate to the Lockley Family Garage Sale. Here’s your chance to have that clean out & drop those items off to number

    20 Dermont Street Hamilton. All proceeds will go towards that much needed Chemo for Paetyn.

    The Garage Sale is this Saturday 14th October 8am.

    Dermont Street residence are getting behind this fundraiser, so it will be “bargain street”

    If you don’t have anything to donate but love a good bargain, go check it out.

    Please spread the word.

    Thank you 😃

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  • Let’s help Paetyn receive another month of Chemo

      10 October 2023
    Main image

    GARAGE SALE - Do you have items laying around your home that you want to donate to the Lockley Family Garage Sale. Here’s your chance to have that clean out & drop those items off to number

    20 Dermont Street Hamilton. All proceeds will go towards that much needed Chemo for Paetyn.

    The Garage Sale is this Saturday 14th October 8am.

    Dermont Street residence are getting behind this fundraiser, so it will be “bargain street”

    If you don’t have anything to donate but love a good bargain, go check it out.

    Please spread the word.

    Thank you 😃

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  • The latest update on Paetyn’s fight

      21 September 2023

    Paetyn has had a few unsettling weeks trying to get CK levels down. Unfortunately he is plagued with quite extreme back pain. His Oncologist decided to lower his dose & see if this helps. We've had a talk on quality of life and end goals which is never an easy conversation to have. In fact it’s absolutely heartbreaking!

    Paetyn never complains and is tending to try & carry on. It's a concern to Paetyn thinking how to survive financially if he cannot contribute by working. We reassure him not to worry and to focus on treatment and fighting this. It's easy to think so far ahead, so we are trying to remember to live day to day. He has been really focusing on making memories and spending lots of time with his brothers and sisters. The importance of family is never lost in times like this, and we are a strong wee family of 8!!!

    If anyone one has any suggestions for CK levels, severe back and muscle pain we'd be keen for your input. Low cost treatments would be ideal, Please look our fb page up “patrick-leisha lockley” and PM us.

    We might not reply straight away but will try to respond.

    Thank you all for helping my son fight this, we are truly grateful to all.

    From Paetyn’s Mum

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  • Update on Paetyn

      20 August 2023

    Paetyn’s CK levels have increased which is a sign of muscle damage/muscle wasting, this is a side effect of his treatment drug. Bloods are weekly now & hoping the ck levels stabilize. Paetyn’s had days of not being able to get up and extreme exhaustion that even sitting up drains his energy. A bit of vomiting here & there but still spirits are high.

    Work have been amazing to him & are doing all they can to ensure he is safe in the workplace & able to do all he can. Obviously Paetyn has a work ethic that makes his desire to do his upmost to work through all the chemotherapy side effects but this isn't always possible, so he has had to have a bit of time off too. Paetyn feels very humbled at people's generousity in supporting him to access this opportunity of treatment. We continue to tell him not to worry about the funds to get treatment, to just focus on what he can do and enjoy life, continue to live and that the funding of his chemotherapy should not be his worry thats mum (me) and dad (patricks) burden to carry & ensure his access. We are a long way off ensuring enough funds for at least 18 months of treatment.

    So again, please share if you can or contact me with fundraising ideas. We are incredibly greatful to all whom have shared his give a little page so far or donated

    https://givealittle.co.nz/cause/young-man-fights-for-his-life

    Thanks again to all.

    Leisha(Paetyn’s mum)

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  • A much needed delivery for Paetyn

      1 August 2023
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    Month 2 of chemotherapy has arrived.

    Thank you so much to everyone who is sharing, donating, praying, sending positive healing vibes. This important package is what you are helping with. Please keep sharing Paetyn’s give a little page as he & his Parents have at least 18 months of chemo they need to secure somehow(this is not funded)

    The Lockley Family are so truly grateful for the help & support they are receiving.

    https://givealittle.co.nz/cause/young-man-fights-for-his-life

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  • A message from Paetyn’s mum

      27 July 2023

    We'd just like to express that we are all in incredibly thankful and humbled by everyone's support. The messages of support and love from all walks of life are so uplifting. Paetyn is nearly 3 weeks on his treatment and has had a reaction earlier on which caused a severe rash on his entire body. It is settling down and he has been able to continue his chemotherapy treatment - the plan is at least 18 months. Paetyn is in good spirits as he has noticed a small growth he had on his neck that wasn't of clinical concern has even shrunk. So we are hopeful that it is doing the same for his perennial nerve sheath tumor. We just want to thank everyone for becoming our village. Our family are firm believers of what you send out, you get back, karma or whatever term you use. So we thank you so very much. We feel the community support and love for paetyn. We are hopeful that both the access to the chemo and the energy we are being sent in love will transcend to successful treatment results.

    Thank you so much, from paetyns mum.

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