The Lockley Family home is full of Love, its also full of Tumors
3 Teenagers in one Family have aggressive Tumors
Hamilton, Waikato
Patrick & Leisha Lockley have 6 children aged between 6 & 22. 3 of those children have aggressive Tumors taking over their young body's in a destructive & painful way
Aayla aged 16 was diagnosed back in 2010 with Brain Tumors in her head. Aayla completed 3 years of aggressive Chemotherapy treatment which was deemed unsuccessful. To this day Aayla's Tumors continue to grown & multiply. Aayla has now lost the feeling in half her head.
Paetyn aged 22 was diagnosed in 2023 with a large aggressive Tumor in his whole right thigh. This Tumor needs to shrink to even attempt any surgical pathway, even then this is not a guaranteed option. Paetyn may lose his leg. Paetyn started Chemotherapy straight away. Sadly this treatment is not funded in New Zealand therfore costing Patrick & Leisha $5000 per treatment for the drug Trametinib
Just last week(end of March 2024) the dreaded news hit the family yet again. Brae aged 15 had an MRI which has shown Tumors & Lesions in his body. This news is so raw & the family are still coming to terms with what they have been told. A treatment plain is currently being arranged.
On top of the above the 4 older children all carry the genetic condition Neurofibromatosis. This gene has been passed on from their dad Patrick who had no idea he had this genetic condition until Leisha was pregnant with child #4. Its a possability Aayla & Brae will both need the same drug Paetyn is on. Adult services transfer is fast approaching which means not funded.
Kylie Tyler's involvement (page creator)
I am a family friend. My family met the Lockley Family through the Child Cancer Foundation when both our daughters were diagnosed with Cancer
Use of funds
$2500/month for the Chemo drug Tranitinib.
Therapy/Rehab, Osteo, Physio, Prescriptions, Pain Management, Counselling, Hospital parking & petrol for Waikato & Starship, Food for hospital admissions (for the parents)
Planning for home and car changes & accessibility for wheelchair(s) access, walker, bathroom adjustment. The Family’s many ongoing future expenses related to their health & wellness.
Latest update
Paetyn’s Surgery - Thursday June 20th 19 June 2024
Paetyn is having a wee break from his chemotherapy treatment until after surgery. This is to give his body and tumour removal the best chance in healing and recovery from his major surgery which is booked for this Thursday June 20th at 8am. We are all beyond nervous. Please hold him in your thoughts and send any positive vibes, prayers and energy you can. We are trying to prepare the house for his arrival home and the modifications he may need. Nothing is quite going to plan but that is life. Occupational therapist have dropped off his wheelchair at least. Paetyn is as always a man of little words but seems in ok spirits. This is greatly helped by how supportive his workplace has been. I will forever be greatful to them and how they have positivley supported him in this and his desire to be successful despite all the obstacles and reasons to add to the 'to hard basket'. Thank you to all of you who have supported us and paetyn this far and those who continue to do so.
Unfortunately we don't get completion or end dates. This is a continuous vicious cycle of life and health altercations with the family genetics.
(Message written from Leisha Lockley - Mum)
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