The Lockley Family home is full of Love, its also full of Tumors

Patrick & Leisha Lockley have 6 children aged between 6 & 22. 3 of those children have aggressive Tumors taking over their young body's in a destructive & painful way

Aayla aged 16 was diagnosed back in 2010 with Brain Tumors in her head. Aayla completed 3 years of aggressive Chemotherapy treatment which was deemed unsuccessful. To this day Aayla's Tumors continue to grown & multiply. Aayla has now lost the feeling in half her head.

Paetyn aged 22 was diagnosed in 2023 with a large aggressive Tumor in his whole right thigh. This Tumor needs to shrink to even attempt any surgical pathway, even then this is not a guaranteed option. Paetyn may lose his leg. Paetyn started Chemotherapy straight away. Sadly this treatment is not funded in New Zealand therfore costing Patrick & Leisha $5000 per treatment for the drug Trametinib

Just last week(end of March 2024) the dreaded news hit the family yet again. Brae aged 15 had an MRI which has shown Tumors & Lesions in his body. This news is so raw & the family are still coming to terms with what they have been told. A treatment plain is currently being arranged.

On top of the above the 4 older children all carry the genetic condition Neurofibromatosis. This gene has been passed on from their dad Patrick who had no idea he had this genetic condition until Leisha was pregnant with child #4. Its a possability Aayla & Brae will both need the same drug Paetyn is on. Adult services transfer is fast approaching which means not funded.