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Zaynes Heart Journey

  • Road to recovery

      6 September 2019
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    Hey everyone

    I am terribly sorry for the delayed update. It has been a very crazy, intense and emotional two weeks. Over the last two weeks that we have been in starship, Zayne has had his kidneys shut down and he went into complete renal failure, he was transferred to the intensive care unit, he began dialysis, he was sedated for 13 days AND he had his open heart surgery yesterday. The surgeons managed to remove all of the endocarditis which was causing problems all over my sons body and also sent more infection to his brain and started a new infection on his femur. They also managed to repair the leaky heart valve temporarily. He most likely will need a further operation in the distant future but after this ordeal, we can deal with anything. He is on a very intense 6 week course of antibiotics and he is at risk of becoming reinfected with the staph aureus infection but we are hoping and praying that that doesn’t happen. My son is such a little fighter, and now a heart warrior. He is on the mend and is being sedated for one more day to rest, and tomorrow he will be waking up. Thank you everyone for your kind and very generous donations. You have no idea what this means for our family xoxo

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  • Open Heart Surgery

      25 August 2019
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    Hi there whanau.

    My sons kidneys almost failed on Friday so we are now on dialysis to give his kidneys a rest so they can heal. He is now in ICU and we are now getting prepared for his open heart surgery which is happening on Monday or Tuesday. We are finally heading in the right direction for my sons recovery but we have many many hurdles and a very long way to go yet. Thank you for your love and support x

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  • Update

      23 August 2019

    Hey everyone. Today we received some more heart shattering news. My sons condition almost had his kidneys shut down today, but luckily the amazing team here in starship were very quick to jump on it and he is now on medication which has helped get his kidneys working fine again. We have also received news that he may need heart surgery as his heart condition is much worse than they initially thought. He is going to recover though but it is a very very long hard journey ahead of us. He is such a soldier, we are going to pull through. Thank you everyone x

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  • Transfer to Starship

      22 August 2019
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    Kiaora whanau and friends. At 9am this morning we were given the news that we were being transferred to starship hospital. My son now has blood clots in his brain that is causing infection as well as the infection in his heart. We are watching very closely for signs of stroke and heart failure. We have been transferred to starship so my son can receive the absolute best care from the brain, heart and infection specialists there. Our stay has jumped from 6-10 weeks to months. I am heart broken that I need to be away from my whanau and my beautiful daughter but that is what this fundraiser can help with - gas to get my family up to bring violet to stay and any other costs that may arise. Thank you.

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