Zoe's Conference

Not sure how I came across this pass but I just had to message you. Our daughter Louise was born in 1993 and diagnosed at 3 day with 4p-

I believe at the time she was the first in nz but in later years meet another family whose daughter was a few years older than Louise but not diagnosed till she was a lot older.

I have been lucky enough to meet two 4p- families over the years.

Sadly Louise passed away nearly 7 years ago at the age of 22.