Noah and Jeanette's Marathon for PWS
Running /walking a (virtual) marathon, 42.2km between March 20th - May 15th, to raise money for clinical trials for PWS.
Auckland
Noah has a rare genetic condition called Prader-Willi Syndrome, (PWS). There are many variables, including low muscle tone, delayed learning, behavioural problems to name but a few and the inability to feel full. The good news is there are several new drugs in trial phases, that could be the key to helping PWS children. The downside is not having enough money to get the trials completed in a reasonable time. I'm running / walking a virtual marathon 42.2km and Noah is coming along for the ride to help raise money to give our gorgeous PWS kids the chance to have the life they deserve.
Jeanette Lask's involvement (page creator)
I'm involved in this fundraiser because, my son Noah has PWS. I want to make sure I have done everything possible, to help the experts with their clinical trials get the best results, as quickly as possible, for Noah and all PWS children.
Participating in
Choose your own dates/times to complete our Virtual Marathon between March 20th and PWS Awareness Day at the end of May. It's easy and fun!
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