Jacob's Marathon
Fundraising for prader willi syndrome because so we can raise money for research and medicine that will help us
Wellington
Hello my name is called Jacob and i have prader willi syndrome. I am thirteen years old and I go to Raumati south school. we live at the kapiti coast in Raumati south. I am looking forward to going to college next year. I am doing the 42 km run in the virtual marathon because so I can help others that need it that can't live by their self. When I am older I want to be a chef and become another one of the best chef in the world. I always wanted to go on mastercheif. That's one of my hardest moments that i will put up with all my life. So that's why i would like you to try to sponsor me for doing a marathon please
Jo Davies' involvement (page creator)
Jacob has challenged himself to run(!) 42km by the end of May in the PWSA(NZ) Virtual Marathon - with perhaps some walking ;) PWS is a complex disorder causing a range of disabilities: physical, intellectual and behavioural, but several new drugs in trial phases show promise of creating a better future for people with PWS.
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Latest update
Lots more short runs! 26 May 2016
Well, we haven't updated for a while! But Jacob has been doing some shorter distance runs: 1.6km, 3km, 1.4km, 1.4km and 1.4km. He's now up to 32.3km which means he has about 10km to complete this weekend!!
Participating in
Choose your own dates/times to complete our Virtual Marathon between March 20th and PWS Awareness Day at the end of May. It's easy and fun!
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