Auckland Marathon Prader Willi Fundraiser - All funds raised will be matched $ for $

As parents of a two year old with PWS, our eyes have been opened to a condition we previously knew nothing about.

Now our hearts long for the best future possible for our beautiful son and all individuals with PWS.

We've attached a video about PWS and how research is seeking to help those with the condition. We highly recommend you watch it.

PWS is a genetic condition which affects 1:15000 births. It affects all races and ages to the same degree and it usually occurs randomly - by chance.

As you'll see in the video the syndrome affects body function in a wide variety of ways - the most commonly known symptom associated with PWS is insatiable hunger where individuals do not feel satisfied or full after consuming food. Imagine feeling like you were hungry your whole life and nothing could make it go away! Parents and caregivers have to implement strict food controls and monitoring, to ensure they do not eat to the risk of their health and safety.

Not only this, but as individuals with PWS have low muscle tone and a slow metabolism, they require a strict diet with reduced calories to ensure that they control their weight.

As mentioned earlier, there are many other symptoms of PWS and you can find out more on the video link attached.

We have hope, we are especially motivated to create the best future we can for those with PWS and therefore are wanting to raise awareness and funds for scientific research into the disorder. We need to find treatment for our kids, especially for the hunger. This will change their futures dramatically, and may even allow them to live independently.

Please help us!!!

We have recruited a group of friends and family who will be walking or running with us in the Auckland half Marathon on Oct 30th.

All funds raised will be collected by PWSA (NZ) and forwarded to:

- the research programme of The Foundation for Prader-Willi Research in America www.fpwr.org.

All funds given to the foundation during the month of october will also be doubled. So we can have a big impact!

Thank you.