Running for Williams Syndrome

This year, friends and family of people who experience Williams Syndrome are running the 2019 Hamilton half marathon to raise awareness and funds for the NZ Williams Syndrome Association.

There are some truly awesome people with Williams Syndrome and their families are a supportive bunch! Every 2 years, we get together to share stories, advice, support and friendship. These camps are full of fun and laughter but also play a vital role in meeting the challenges we all face.

About Williams Syndrome

Williams Syndrome is a genetic condition that is present at birth and can affect anyone. It is characterised by medical problems, including cardiovascular disease, developmental delays, and learning disabilities. These often occur side by side with striking verbal abilities, highly social personalities and an affinity for music.

Williams Syndrome affects 1 in 10,000 people worldwide – an estimated 20,000 to 30,000 people in the United States and 200 in New Zealand. Many babies may have life-threatening cardiovascular problems. As they grow, they struggle with things like spatial relations, numbers, and abstract reasoning, which can make daily tasks a challenge.

As adults, most people with Williams Syndrome will need support to live to their fullest potential. As people with Williams Syndrome mature, they often experience intense isolation which can lead to depression. They are extremely sociable and experience the normal need to connect with others; however people with Williams Syndrome often don’t process nuanced social cues and this makes it difficult to form lasting relationships.

Funds raised through this event will go towards the expenses associated with running biannual Williams Syndrome camps. Every two years the NZ Williams Syndrome Associations (NZWSA) holds a national family camp. This is the primary ‘gathering’ for the group and is eagerly anticipated by the members of the association. The camps are usually attended by 120 – 180 people. These camps are greatly beneficial for people with Williams Syndrome, parents and siblings.

For more information about Williams Syndrome, check out our website, like our facebook page or follow our Instagram page.

Each week we post a "Williams Syndrome Wednesday" post to raise awareness and share a story about someone living with the condition in New Zealand.

williams-syndrome.org.nz || facebook.com/WilliamsSyndromeNZ/ || @williamssyndromenz