Tara and Emily's Marathon for PWS

$1,200 of $500 goal
Given by 19 generous donors in 10 weeks

Please support Tara as she walks 42 km over the next 8 weeks to raise money for PWS research! Emily will walk 10km. Go girls!

Nelson / Tasman

Emily has a rare genetic condition - Prader-willi syndrome, (PWS). This has many possible consequences including low muscle tone, cognitive disabilities and hormonal imbalances causing anxiety and the inability to feel full after a meal. We don't want constant hunger to impact on Emily's life in the future. The good news is several new drugs show great promise! Clinical trials are underway with money being the major factor in the length of time it will take to get them approved for our children. Thankyou for your support - together we're creating a better future for people with PWS.

Sarah McLarin's involvement (page creator)

We're getting on board with the New Zealand PWS Association's Virtual Marathon Fundraiser for Prader willi Syndrome Research. Our daughter Emily has Prader willi Syndrome.

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Latest update

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Virtual Marathon officially begins!  24 March 2016

Posted by: Prader-Willi Syndrome Association on behalf of PWS Research and PWRFA

Our Virtual Marathon officially began on Sunday March 20th at our Family Camp in Hanmer Springs. Walkers completed their first 5K - a great start!

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Participating in

Virtual Marathon for PWS Research 2016

Choose your own dates/times to complete our Virtual Marathon between March 20th and PWS Awareness Day at the end of May. It's easy and fun!

Latest donations

Maurie & Cathy
Maurie & Cathy on 29 May 2016
Congratulations on making it your goal. Well done both of you.
Em Chetwin
Em Chetwin on 26 May 2016
Massive effort girls!!! Well done! What a great thing to do.
Vellenoweths on 26 May 2016
Fantastic effort girls! Xx
Grandma & Grandad
Grandma & Grandad on 22 May 2016
Well Done Girls!
Rach&M&C&Gran on 13 May 2016

Who's involved?

Tax credit
Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
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This campaign started on 16 Mar 2016 and ended on 31 May 2016.