Tara and Emily's Marathon for PWS

Emily has a rare genetic condition - Prader-willi syndrome, (PWS). This has many possible consequences including low muscle tone, cognitive disabilities and hormonal imbalances causing anxiety and the inability to feel full after a meal. We don't want constant hunger to impact on Emily's life in the future. The good news is several new drugs show great promise! Clinical trials are underway with money being the major factor in the length of time it will take to get them approved for our children. Thankyou for your support - together we're creating a better future for people with PWS.