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Tom's Coast2Coast NZ for EB


$2,050 of $2,430 goal

Given by 18 generous donors in 14 days

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Raising awareness of EB through my effort to complete the individual 2 day Kathmandu Coast to Coast Multisport event in February 2020.

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  Canterbury

We take so much for granted in our generally comfortable lives. Butterfly Children is a term often used to describe children with Epidermolysis Bullosa (EB), a rare genetic disorder that limits the body’s ability to form healthy skin, because their skin is as fragile as a butterfly’s wings.

DEBRA is a worldwide network of national groups working on behalf of those affected by the genetic skin blistering condition, EB.

Brave children and their families the world over rely on DEBRA to improve the quality of their lives through support and medical care. Click to donate and/or share this page to help make the lives of New Zealanders with EB just a little bit more comfortable.

Tom Rochford's involvement (page creator)

Through my work at ARANZ Medical, I have become aware of how challenging life is for people living with EB. I have set up this page to help raise funds and awareness.

Please donate and/or share this page.

Other page links


Latest update

A bold target has been set.  2 December 2019

$10 for every km of 'joy and pain'.

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Latest donations

  • Erik

    Erik 7 days ago

    $100

    Way to go, Tom!

    $100

    • Tom Rochford

      Thanks for this Erik, and for all your other support.

  • Mark

    Mark on 05 Dec 2019

    $40

    Awesome work Tom.

    $40

    • Tom Rochford

      Cheers Mark, Love your work dude.

  • Shinwook

    Shinwook on 05 Dec 2019

    $30

    I love your work Tom.

    $30

    • Tom Rochford

      Thanks so much Shinwook, likewise.

  • Matthew

    Matthew on 05 Dec 2019

    $20

    Great cause. Go Tom.

    $20

    • Tom Rochford

      Cheers Man.

  • Sammy W Schnitzel

    Sammy W Schnitzel on 05 Dec 2019

    Private

    Private

    • Tom Rochford

      Wow Marion, thanks so much. I hope you are well.


Who's involved?

Tom Rochford's avatar
Created by Tom Rochford
DEBRA NZ's avatar
Paying to the page DEBRA NZ

Tax credit Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.

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This page was created on 1 Dec 2019 and closes on 2 Jun 2020.
$2,050 of $2,430 goal

Given by 18 generous donors in 14 days

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