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Tom's Coast2Coast NZ for EB

$3,055 of $2,430 goal

Given by 33 generous donors in 7 weeks

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Raising awareness of EB through my effort to complete the individual 2 day Kathmandu Coast to Coast Multisport event in February 2020.

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We take so much for granted in our generally comfortable lives. Butterfly Children is a term often used to describe children with Epidermolysis Bullosa (EB), a rare genetic disorder that limits the body’s ability to form healthy skin, because their skin is as fragile as a butterfly’s wings.

DEBRA is a worldwide network of national groups working on behalf of those affected by the genetic skin blistering condition, EB.

Brave children and their families the world over rely on DEBRA to improve the quality of their lives through support and medical care. Click to donate and/or share this page to help make the lives of New Zealanders with EB just a little bit more comfortable.

Tom Rochford's involvement (page creator)

Through my work at ARANZ Medical, I have become aware of how challenging life is for people living with EB. I have set up this page to help raise funds and awareness.

Please donate and/or share this page.

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Latest update

A bold target has been set.  2 December 2019

$10 for every km of 'joy and pain'.

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Latest donations

  • Michaela

    Michaela 2 hours ago


    All the best Tom. Well done on the fund raiser 😊


  • The Porters

    The Porters 11 hours ago


    Superb cause on a number of fronts.


  • Campions

    Campions 11 hours ago


    Go for it! Amazing cause


  • KC & Ripper

    KC & Ripper 12 hours ago


    Sweat and love for a great cause. Love from us xx


  • Chris

    Chris 14 hours ago


    Great effort and build up - go well and have a great event


Who's involved?

Tom Rochford's avatar
Created by Tom Rochford
DEBRA NZ's avatar
Paying to the page DEBRA NZ

Tax credit Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.

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This page was created on 1 Dec 2019 and closes on 2 Jun 2020.
$3,055 of $2,430 goal

Given by 33 generous donors in 7 weeks

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