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Tom's Coast2Coast NZ for EB

Closed Fundraiser page created in the Health category by Tom Rochford

$3,625 of $2,430 goal
Given by 44 generous donors in around 6 months

Raising awareness of EB through my effort to complete the individual 2 day Kathmandu Coast to Coast Multisport event in February 2020.

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We take so much for granted in our generally comfortable lives. Butterfly Children is a term often used to describe children with Epidermolysis Bullosa (EB), a rare genetic disorder that limits the body’s ability to form healthy skin, because their skin is as fragile as a butterfly’s wings.

DEBRA is a worldwide network of national groups working on behalf of those affected by the genetic skin blistering condition, EB.

Brave children and their families the world over rely on DEBRA to improve the quality of their lives through support and medical care. Click to donate and/or share this page to help make the lives of New Zealanders with EB just a little bit more comfortable.

Tom Rochford's involvement (page creator)

Through my work at ARANZ Medical, I have become aware of how challenging life is for people living with EB. I have set up this page to help raise funds and awareness.

Please donate and/or share this page.

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Latest update

A bold target has been set.  2 December 2019

Posted by: Tom Rochford

$10 for every km of 'joy and pain'.

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Latest donations

Phil on 13 Feb 2020
Good effort Tom!
Karyn n Alister
Karyn n Alister on 08 Feb 2020
Gooooooo Tom!!!! So impressed with your effort!
Tom Rochford

Thanks so much K&A. I hope you are both well.

Tom Rochford
Joanne on 05 Feb 2020
Sending you lots of luck from California! You'll smash it I'm sure. Love, Jo and Andy x
Tom Rochford

Thanks so much Jo and Andy !! Much appreciated.

Tom Rochford
Gwin on 05 Feb 2020
Great cause Tom, good luck.
Tom Rochford

Thanks so much Gwin. Tom

Tom Rochford
Tim on 04 Feb 2020
Pulling for You Tom Every Stride !
Tom Rochford

Thanks so much Tim. Appreciate the support at work too. It means a lot.

Tom Rochford

Who's involved?

Tom Rochford's avatar
Created by Tom Rochford
DEBRA NZ's avatar
Paying to DEBRA NZ

Tax credit Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
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This page was created on 1 Dec 2019 and closed on 2 Jun 2020.
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