DEBRA NZ supports those with EB (Epidermolysis Bullosa) and their families. Life with EB is often very painful but with your help life can


DEBRA NZ employs Specialist EB Nurses, who provide expert advice to those with fragile skin and their families, help train in-home bandage teams and advise other health professionals.

DEBRA organises family camps and conferences, where children and families living with EB can come together for mutual support and friendship and to learn about latest treatments and research.

It wasn’t long ago when people with severe EB didn’t survive beyond childhood. This remains the case in many countries. Thanks to DEBRA our Butterfly Children receive good care and support, life expectancy is extended and quality of life much improved. Every donation helps make life better for the Butterfly Children, reducing pain and isolation caused by fragile skin.

More about us

DEBRA NZ employs Specialist EB Nurses, provide expert advice to those with EB, and advise health professionals. We organize camps where, children and families with EB come together for support, friendship and learn about latest treatments and research.

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Latest donations

Michael Mckeever

Thank you for your very kind donation

Michael Mckeever
Dr Mike Kearsley
Dr Mike Kearsley on 09 Nov 2023
This donation is made in the name of Dr Mike Kearsley

Thank you so much Mike for another generous donation.

Michael Mckeever

Legend Gazza . Thank you

Michael Mckeever

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