DEBRA NZ

DEBRA NZ supports those with EB (Epidermolysis Bullosa) and their families. Life with EB is often very painful but with your help life can

Nationwide

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DEBRA NZ employs Specialist EB Nurses, who provide expert advice to those with fragile skin and their families, help train in-home bandage teams and advise other health professionals.

DEBRA organises family camps and conferences, where children and families living with EB can come together for mutual support and friendship and to learn about latest treatments and research.

It wasn’t long ago when people with severe EB didn’t survive beyond childhood. This remains the case in many countries. Thanks to DEBRA our Butterfly Children receive good care and support, life expectancy is extended and quality of life much improved. Every donation helps make life better for the Butterfly Children, reducing pain and isolation caused by fragile skin.

More about us

DEBRA NZ employs Specialist EB Nurses, provide expert advice to those with EB, and advise health professionals. We organize camps where, children and families with EB come together for support, friendship and learn about latest treatments and research.

On average, fundraisers pay just 2% to use Givealittle. This is one of the lowest effective fees in New Zealand fundraising. We charge a 5% platform fee to cover the cost of running the platform. Because most donors choose to top up their donation to cover this fee, the effective cost paid by fundraisers is about 2%. That means around 98 cents of every dollar raised goes to the cause. Learn More