DEBRA NZ supports those with EB (Epidermolysis Bullosa) and their families. Life with EB is often very painful but with your help life can
DEBRA NZ employs Specialist EB Nurses, who provide expert advice to those with fragile skin and their families, help train in-home bandage teams and advise other health professionals.
DEBRA organises family camps and conferences, where children and families living with EB can come together for mutual support and friendship and to learn about latest treatments and research.
It wasn’t long ago when people with severe EB didn’t survive beyond childhood. This remains the case in many countries. Thanks to DEBRA our Butterfly Children receive good care and support, life expectancy is extended and quality of life much improved. Every donation helps make life better for the Butterfly Children, reducing pain and isolation caused by fragile skin.