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The Angelman Network

  • International Angelman Day 2024

      16 February 2024
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    Global research on Angelman syndrome is looking very promising, and there are several potential treatments on the horizon. The Angelman Network is keen to catch up with other countries and establish an Angelman clinic (in Auckland) - to collate clinical data, improve standards of care for AS in NZ, support our kiwi families, and provide a potential trial site.

    This project will come with ongoing expenses - to manage the clinics, and to help families to access the clinics. Please help us to improve the lives of those who live with Angelman syndrome in NZ. We appreciate and thank you for any donations.

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  • International Angelman Day 2018

      15 February 2018
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    What is International Angelman Day?

    International Angelman Day (IAD) is observed annually on the 15th February to raise awareness worldwide for Angelman Syndrome (AS) – a rare neurogenetic disorder that affects chromosome 15, resulting in intellectual and developmental delay. It affects about 1 in 15,000 people. The date selected is in recognition of the 15th chromosome affected, and February is International Rare Disease month.

    The purpose of this day is to:

    - Raise awareness worldwide of the condition

    - Mobilise people to action & encourage fundraising for the individual organisation in their country

    - Promote research and educational resources in the organisation’s own country

    - Remember those people with Angelman Syndrome who are no longer with us

    Please help us by donating to our cause as we unite to commemorate this special day, each year. Thank you!

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  • International Angelman Day 2017

      15 June 2017
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    Raising awareness for Angelman syndrome

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