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The Angelman Network

  • International Angelman Day 2018     15 February 2018
    Posted by: The Angelman Network
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    What is International Angelman Day?

    International Angelman Day (IAD) is observed annually on the 15th February to raise awareness worldwide for Angelman Syndrome (AS) – a rare neurogenetic disorder that affects chromosome 15, resulting in intellectual and developmental delay. It affects about 1 in 15,000 people. The date selected is in recognition of the 15th chromosome affected, and February is International Rare Disease month.

    The purpose of this day is to:

    - Raise awareness worldwide of the condition

    - Mobilise people to action & encourage fundraising for the individual organisation in their country

    - Promote research and educational resources in the organisation’s own country

    - Remember those people with Angelman Syndrome who are no longer with us

    Please help us by donating to our cause as we unite to commemorate this special day, each year. Thank you!

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  • International Angelman Day 2017     15 June 2017
    Posted by: The Angelman Network
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    Raising awareness for Angelman syndrome

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