The Angelman Network

  Auckland
Organisation page created in the Community category
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The Angelman Network is a Registered Charitable Trust based in NZ that connects and supports those affected by Angelman syndrome (AS)

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  Auckland

The Angelman Network is a family/whānau driven charitable trust based in New Zealand that connects and supports those affected by Angelman syndrome (AS). The organisation aims to help improve the lives of New Zealanders impacted by Angelman syndrome - a rare neuro-genetic condition characterized by global developmental delays and severe speech impairment.

Individuals with Angelman Syndrome have a movement/balance disorder, many have a seizure disorder, which at times can be difficult to treat, and most need very little sleep when young. Most children with AS are usually very sociable, and display a happy demeanour.

We are a Registered Charitable Trust (Charities Commission no: CC46746) and are 100% volunteer-run. We have a wide international network and our website is a reliable source of up-to-date information on this rare condition. www.angelman.org.nz

More about us

The Angelman Network connects and supports those impacted by Angelman Syndrome (AS) - a rare condition that affects approx. 1:20 000. It is a neuro-genetic disorder characterized by global developmental delays and severe speech impairment. Individuals with AS can also have a movement/balance disorder and many suffer with life-threatening seizures. Despite these severe challenges, they display an exceptionally happy disposition with their own unique and affectionate personalities.

The Angelman Network accesses and distributes up-to-date information about AS sourced locally and internationally via our website and social media sites. We support our NZ parents/care givers and help raise awareness of AS in New Zealand - among clinicians, therapists, schools, agencies and the community. We also pursue opportunities to promote further research related to AS. www.angelman.org.nz


Latest update

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International Angelman Day 2018  15 February 2018

What is International Angelman Day?

International Angelman Day (IAD) is observed annually on the 15th February to raise awareness worldwide for Angelman Syndrome (AS) – a rare neurogenetic disorder that affects chromosome 15, resulting in intellectual and developmental delay. It affects about 1 in 15,000 people. The date selected is in recognition of the 15th chromosome affected, and February is International Rare Disease month.

The purpose of this day is to:

- Raise awareness worldwide of the condition

- Mobilise people to action & encourage fundraising for the individual organisation in their country

- Promote research and educational resources in the organisation’s own country

- Remember those people with Angelman Syndrome who are no longer with us

Please help us by donating to our cause as we unite to commemorate this special day, each year. Thank you!

Read 1 more update


Latest donations

  • KP

    KP on 15 Feb 2019

    $50

    Supporting the beautiful Kaya and her gorgeous Mumma 😍 love you both all the way from London town xxx

    $50

  • Loretta Wilson

    Loretta Wilson on 21 Mar 2018

    $50

    For my great grandson's birthday. Nate Wakelin

    $50

  • Holmes

    Holmes on 16 Aug 2017

    $300

    Donation from Holmes Group and Holmes Consulting in memory of Marian Hare.

    $300

  • Guest Donor

    Guest Donor on 19 May 2017

    $30

    $30

  • Carol Raynes

    Carol Raynes on 29 Mar 2017

    Private

    Private


Who's involved?

The Angelman Network's avatar
Created by, and paying to a verified bank account of, The Angelman Network (Charity)

Registered Charity A Registered Charity has legal recognition under the Charities Act 2005.
Tax credit Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.

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