The Angelman Network

The Angelman Network is a Registered Charitable Trust based in NZ that connects and supports those impacted by Angelman syndrome (AS)

Auckland

The Angelman Network is a family/whānau driven charitable trust based in New Zealand that connects and supports those impacted by Angelman syndrome (AS). The organisation aims to help improve the lives of New Zealanders impacted by Angelman syndrome - a rare neurogenetic condition characterized by global developmental delays and severe speech impairment.

Individuals with Angelman Syndrome have a movement/balance disorder, many have a seizure disorder, which at times can be difficult to treat, and most need very little sleep when young. Despite these difficult challenges, most children with AS are usually very sociable, and display a happy demeanour. Their smiles can light up a room!

We are a Registered Charitable Trust (Charities Commission no: CC46746) and are 100% volunteer-run. We have a wide international network and our website is a source of up-to-date information on this rare condition. www.angelman.org.nz

International Angelman Day 2025 10 February 2025

International Angelman Day is on 15 February, when The Angelman Network calls on friends, whanau, allies, and supporters to fundraise. Funds help create resources, maintain the website, provide grants, and support future projects. Future treatments and potential clinics are on the horizon. These projects will improve the lives of all those impacted by AS in Aotearoa NZ. Please share our page! Together, we can make a difference for Angelman Syndrome. Your support matters.

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