Cystic Fibrosis NZ - Nelson Marlborough Branch

People living with Cystic Fibrosis, NEED YOU HELP!

Who Are We?

The team here at Nelson Marlborough branch of Cystic Fibrosis NZ aim to provide support to the locals and their families within the community living with Cystic Fibrosis with the hidden costs of living with the condition. Through fundraising and your support we aim to provide assistance with:-

Welfare Issues- offer Financial support for things like heating (To prevent those colds), extended periods of hospitalisation, dietary needs, transport costs with increased hospital and medical appointments.

Equipment- such as nebulisers, specialised physio equipment, not provided by the government heath care. Also we can contribute to a local costs of the national breath for CF grant.

Education- provide and fund education to carers, schools, young adults and possible employers, to enhance the quality of life to our community of people living with CF and minimilise the risk to their life the best we can.

What Are We Trying TO Raise?

On average it costs a minimum of $20000 per year to provide that support for people with CF and their families in our region. Members of the branch are all volunteers and accept no payment for this work. Therefore we ask for any little help via donations or anyone willing to fundraise for our cause, a little bit goes a long way to help someone breathe.

Why Do we Need Funds?

Take a moment and Breathe! How easy was that? Think about the last time you did exercise just for the fun of it or thought I do not feel like exercise today I'm just going to Chill. Think about your last Cold, you felt terrible but after a while it went away and life continued.

People living with Cystic Fibrosis (CF) have thick Sticky mucus that can block their airways and other tiny tubes to their organs. This makes is difficult to breathe and digest food, leaving them mal-nourished and difficult to maintain weigh. Exercise is a necessity to life! If a person with CF gets a cold it can mean months of antibiotic, hospital admissions and damage to the lungs that will never heal. A daily regime of Physiotherapy, exercise, multiple medications and nebulisers help to provide a quality life and keep their lungs as healthy as possible, for as long as possible. A person with Cystic Fibrosis needs a high energy, high fat, high salt intake at a much high volume than someone without CF to stay nourished enough to help fight illness an grow. There is no cure at present but in the future with research, new medicines and technology we still hope for a cure, or advances in treatment to prolong and provide quality to the life of someone living with Cystic Fibrosis.

As mentioned earlier although it is important to raise funds for research to find a cure/ quality treatment, we aim to help the Nelson Marlborough people and families with Cystic Fibrosis live for today.

As a group we plan to do some funraising events to help raise awareness and encourage support for our cause.

Thank you for you time in reading and any support given.

Nelson Marlborough Cystic Fibrosis NZ Branch