Alfie’s journey to recovery and battle against Myelodysplatic Syndrome MDS
Support Alfie and his whanau take on this battle as he begins treatment for Myelodysplastic Syndrome MDS
Christchurch, Canterbury
Our much loved Alfie James, has at 2 and 1/2 year’s old been diagnosed with Myelodysplastic Syndrome (MDS) — a rare and potentially life threatening blood disorder, that also puts him at high risk of developing Leukaemia.
Alfie’s condition requires intensive and regular monitoring, every week is filled with medical apts, interventions and treatment that can be painful and at times scarey for Alfie.
Subsequently, this takes a huge emotional toll on his Mum and Dad and extended whanau.
Alfie’s recovery depends on a bone marrow transplant. A world wide search has now found a donor match for him in Germany.
The next stages of Alfie’s treatment require chemotherapy and then the bone marrow transplant, requiring him to be admitted to Starship Children’s Hospital in Auckland.
This journey means months away from his home, his friends, whanau and the life he knows and loves.
This will be an all round challenging time for Alfie, his Mum and Dad, as they relocate for several months, far away from home, to access the specialist treatment he desperately needs.
Please help us make Alfie happy, comfortable and supported, with his parents by his side whilst he embarks on his life saving journey
We do not have a particular funding target. Any donations big or small, makes a difference and is appreciated beyond measure.
Melanie Kilsby's involvement (page creator)
I am Alfie’s Nan
Use of funds
Your support will help ease the financial burden of travel, loss of income and the many unknown expenses that comes with medical treatment far away from home. Most importantly it will allow Alfie’s Mum and Dad to be by his side during this critical time.
Latest update
Our final update - and a thank you. 9 May 2026
To every family member, friend, acquaintance, and complete stranger who donated to our son’s Givealittle page during the hardest chapter of our lives, thank you will never feel like enough.
When our boy was diagnosed with myelodysplastic syndrome, our world stopped. The fear, uncertainty, hospital stays, treatments, and emotional exhaustion were overwhelming, but your kindness carried us through moments we truly did not think we could survive.
Every donation, message, share, prayer, cuddle, and check in reminded us that we were never fighting this battle alone. You gave us hope on the darkest days, lifted financial pressure from our shoulders, and allowed us to focus fully on loving and supporting our son through treatment.
Because of the generosity, compassion, and support shown by so many people, we felt surrounded by strength even when we felt completely broken. Fast forward to today, our beautiful boy is officially in remission and has rung the bell.
Hearing that bell was the most emotional, powerful, and unforgettable moment of our lives. It represents every needle, every tear, every sleepless night, every ounce of courage, and every single person who stood beside us.
From the bottom of our hearts, thank you for helping our son get here. We will never forget it. Your kindness has forever changed our family, and we hope you know how deeply loved and appreciated you all truly are.
E kore rawa te mihi e mutu ki a koe
The gratitude towards you will never end.
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