Alfie’s journey to recovery and battle against Myelodysplatic Syndrome MDS

$13,714 donated
Given by 346 generous donors in around 3 months

Support Alfie and his whanau take on this battle as he begins treatment for Myelodysplastic Syndrome MDS

Christchurch, Canterbury

Our much loved Alfie James, has at 2 and 1/2 year’s old been diagnosed with Myelodysplastic Syndrome (MDS) — a rare and potentially life threatening blood disorder, that also puts him at high risk of developing Leukaemia.

Alfie’s condition requires intensive and regular monitoring, every week is filled with medical apts, interventions and treatment that can be painful and at times scarey for Alfie.

Subsequently, this takes a huge emotional toll on his Mum and Dad and extended whanau.

Alfie’s recovery depends on a bone marrow transplant. A world wide search has now found a donor match for him in Germany.

The next stages of Alfie’s treatment require chemotherapy and then the bone marrow transplant, requiring him to be admitted to Starship Children’s Hospital in Auckland.

This journey means months away from his home, his friends, whanau and the life he knows and loves.

This will be an all round challenging time for Alfie, his Mum and Dad, as they relocate for several months, far away from home, to access the specialist treatment he desperately needs.

Please help us make Alfie happy, comfortable and supported, with his parents by his side whilst he embarks on his life saving journey

We do not have a particular funding target. Any donations big or small, makes a difference and is appreciated beyond measure.

Melanie Kilsby's involvement (page creator)

I am Alfie’s Nan

Use of funds

Your support will help ease the financial burden of travel, loss of income and the many unknown expenses that comes with medical treatment far away from home. Most importantly it will allow Alfie’s Mum and Dad to be by his side during this critical time.

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Latest update

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31 days post transplant   6 July 2025

Posted by: Alesha Kilsby

Wow what a whirlwind past month it has been. From absolute rock bottoms due to the nasty side effects of the chemo, some days felt like the world wasn’t even spinning, Alfie like usual has fought the big fight and has come out on top, with his blood counts sky rocketing through and the doctors classing him “fully engrafted” Alfie’s transplant has been a miracle. Alfie’s grace and determination is motivational and witnessing first hand the absolute strength in such a tiny human is just humbling. We are beyond proud of him and so incredibly grateful for the overwhelming supporting we have received throughout his journey so far. We are still facing small set backs but Alfie is due to be discharged down to the Ronald McDonald house next week, where we will stay for the next 2-3 months. We also celebrated Alfie’s 3rd birthday in hospital 🥳 where we were lucky enough to spend cherished time with whanau outside of the hospital.

Looking forward to updating you all again once we are settled back down in our apartment for the foreseeable future 💕

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Latest donations

Tom
Tom on 31 Jul 2025
$5
Nina
Nina on 29 Jul 2025
$10
Keeleigh
Keeleigh on 20 Jul 2025
$30
Dev
Dev on 19 Jul 2025
All the very best to you
$50
Zoey
Zoey on 19 Jul 2025
$50

Who's involved?

Melanie Kilsby's avatar
Created by Melanie Kilsby
Alesha Kilsby's avatar
Paying to a verified bank account of Alesha Kilsby
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This campaign started on 9 May 2025 and ended on 9 Aug 2025.