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Ed Weston - teacher, poet, artist, mentor, chef and friend

Cause page created in the Health category by Claire Lander for Edgar Weston

  • $33,203.36 donated
  • 573 generous donors

To support a valued friend, colleague and teacher to afford the $7,500 per month medication that he needs at this time.

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In December 2017 Ed Weston was diagnosed with Haemalytic Anaemia, a blood disorder. After a week in hospital he was discharged and his condition was treated with steriods. At that stage the cause of the disorder could not be identified, in spite of a range of tests and a weekly blood test. Finally, at the end of January 2018, Ed underwent a bone marrow test which revealed that his diagnosis was an aggressive form of cancer - Mantle Cell Lymphoma - (a non-Hodgkins Lymphoma).

His treatment by steriods was continued until the beginning of August when he underwent chemotheraapy on a programme of six sessions each three weeks apart. After the second session the treatment was discontinued and in mid September a new four day chemotherapy programme was introduced which led to Ed being hospitalised for five days with a seriously compromised immune system.

Other treatments were discussed e.g. radiotherapy or surgery and removing the spleen. However, after a number of further tests both these options were ruled out and he was informed that his life expectancy would probably not extend much beyond Christmas, 2018! He was referred to the local Hospice and told he was now under their palliative care.

At this stage he was also informed that the ONLY alternative treatment available was a non-funded drug called Ibutrinib - a directed drug therapy - at the ycost of $7500 per month.

After considering the options Ed and Joanne made the decision to commence treatment with this new medication, which began on the 09.11.2018. At this stage it appears that the treatment with Ibutrinib has improved his condition. In addition to this treatment the specialiast has also decided to give him a further three sessions of chemotherapy.

The reality of the situation is that without this treatment Ed's life expectancy remains in the balance!


Use of Funds:

To support the funding of Ibutrinib, a $7,500 per month non-funded cancer treatment drug.

Page created by:

Claire Lander

Individual
Bay of Plenty

Ed Weston is a highly valued member of the Otumoetai College staff. We are supporting him at this time as we care deeply for him and his family.

All funds raised benefit:

Edgar Weston

Individual
Bay of Plenty

Funds will be paid to a verified bank account of Edgar Weston.

  • $33,203.36 donated
  • 573 generous donors

$33,203 donated

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This cause page was created on 13 Dec 2018 and closes at 23:59 NZST (UTC +12:00) on 13 Dec 2019.

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