Ed Weston - teacher, poet, artist, mentor, chef and friend
To support a valued friend, colleague and teacher to afford the $7,500 per month medication that he needs at this time.Bay of Plenty
In December 2017 Ed Weston was diagnosed with Haemalytic Anaemia, a blood disorder. After a week in hospital he was discharged and his condition was treated with steriods. At that stage the cause of the disorder could not be identified, in spite of a range of tests and a weekly blood test. Finally, at the end of January 2018, Ed underwent a bone marrow test which revealed that his diagnosis was an aggressive form of cancer - Mantle Cell Lymphoma - (a non-Hodgkins Lymphoma).
His treatment by steriods was continued until the beginning of August when he underwent chemotheraapy on a programme of six sessions each three weeks apart. After the second session the treatment was discontinued and in mid September a new four day chemotherapy programme was introduced which led to Ed being hospitalised for five days with a seriously compromised immune system.
Other treatments were discussed e.g. radiotherapy or surgery and removing the spleen. However, after a number of further tests both these options were ruled out and he was informed that his life expectancy would probably not extend much beyond Christmas, 2018! He was referred to the local Hospice and told he was now under their palliative care.
At this stage he was also informed that the ONLY alternative treatment available was a non-funded drug called Ibutrinib - a directed drug therapy - at the ycost of $7500 per month.
After considering the options Ed and Joanne made the decision to commence treatment with this new medication, which began on the 09.11.2018. At this stage it appears that the treatment with Ibutrinib has improved his condition. In addition to this treatment the specialiast has also decided to give him a further three sessions of chemotherapy.
The reality of the situation is that without this treatment Ed's life expectancy remains in the balance!
Claire Lander's involvement
Ed Weston is a highly valued member of the Otumoetai College staff. We are supporting him at this time as we care deeply for him and his family.
Use of funds
To support the funding of Ibutrinib, a $7,500 per month non-funded cancer treatment drug.
Other page links
It is just over a month since my last update! Things have changed quite rapidly with me going on to a new alternate regime of chemo by tablet form every alternative day and also radiation therapy for 10 consecutive days finishing on Friday, 12 April and now having to deal with the incredible side effects of fatigue! Furthermore, the chemo has in the interim been temporarily suspended to allow the specialists an opportunity to gauge whether or not the radiation is doing its job!
Again may I thank you all for walking with me on what is becoming an increasingly difficult road to walk or if you wish climbing the mountain is presenting some really challenging traverses!
Within myself I am strong and count each day a blessing! My teacher continues to demand more and more from me but the lessons I learn fill me with profound joy - as strange as that may seem!
As the Dalai Lama once said “one step at a time”! And, that is how I manage to get by each day!
Thanks particularly to Kim Watson-Whyte, Sarah Smythe, Claire Lander and a number of senior Otumoetai College Students for their support and organisation of the film night. I'd also like to thank Kathryn Knipe for organising the raffle, and Brendon Good for Brookfield New World's generous sponsorship of the raffle prize and the platters on the film night.
The raffle was won by a very happy Lou Wreaks! Congratulations.
FundraiseYou can start a fundraiser to have your own page that raises money directly for Edgar Weston.
Got a question for the page owner?Ask one here
Any concerns?Report this page
This page was created on 13 Dec 2018 and closes on 13 Dec 2019.
You might notice some changes - we've updated our page layout to give a better experience. We think we've hit the mark, but if something's not right, please let us know by emailing email@example.com.