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Ed Weston - teacher, poet, artist, mentor, chef and friend

Cause page created in the Health category by Claire Lander for Edgar Weston


$40,511 donated

Given by 612 generous donors in 5 months

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To support a valued friend, colleague and teacher to afford the $7,500 per month medication that he needs at this time.

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In December 2017 Ed Weston was diagnosed with Haemalytic Anaemia, a blood disorder. After a week in hospital he was discharged and his condition was treated with steriods. At that stage the cause of the disorder could not be identified, in spite of a range of tests and a weekly blood test. Finally, at the end of January 2018, Ed underwent a bone marrow test which revealed that his diagnosis was an aggressive form of cancer - Mantle Cell Lymphoma - (a non-Hodgkins Lymphoma).

His treatment by steriods was continued until the beginning of August when he underwent chemotheraapy on a programme of six sessions each three weeks apart. After the second session the treatment was discontinued and in mid September a new four day chemotherapy programme was introduced which led to Ed being hospitalised for five days with a seriously compromised immune system.

Other treatments were discussed e.g. radiotherapy or surgery and removing the spleen. However, after a number of further tests both these options were ruled out and he was informed that his life expectancy would probably not extend much beyond Christmas, 2018! He was referred to the local Hospice and told he was now under their palliative care.

At this stage he was also informed that the ONLY alternative treatment available was a non-funded drug called Ibutrinib - a directed drug therapy - at the ycost of $7500 per month.

After considering the options Ed and Joanne made the decision to commence treatment with this new medication, which began on the 09.11.2018. At this stage it appears that the treatment with Ibutrinib has improved his condition. In addition to this treatment the specialiast has also decided to give him a further three sessions of chemotherapy.

The reality of the situation is that without this treatment Ed's life expectancy remains in the balance!

Use of funds

To support the funding of Ibutrinib, a $7,500 per month non-funded cancer treatment drug.


Latest donations

  • Simone Chieppa

    Simone Chieppa on 05 Apr 2019

    $125

    $125

  • Lauren May

    Lauren May on 27 Mar 2019

    $20

    Can’t make it to the movie but here’s what I would have paid. We love you Ed - and love seeing you live life to the fullest. 💖💖💖

    $20

  • Guest Donor

    Guest Donor on 27 Mar 2019

    Private

    C2 Sandwich Press

    Private

  • Guest Donor

    Guest Donor on 23 Mar 2019

    $15

    Much love ♡

    $15

  • Debbie & Hugh Clark

    Debbie & Hugh Clark on 23 Mar 2019

    $200

    $200

Page created by

Claire Lander

Individual
Bay of Plenty

Ed Weston is a highly valued member of the Otumoetai College staff. We are supporting him at this time as we care deeply for him and his family.

All funds raised benefit

Edgar Weston

Individual
Bay of Plenty

Funds will be paid to a verified bank account of Edgar Weston.

Got a question?

Ask one here.
“So pleased you had a sensational Summer and here is a little more help toward an awesome Autumn.”
“my daughter thrived with you as her English teacher, I hope you continue to thrive for yourself :)”
“Still on your side my friend.”
“Hope it helps 🕊”
“So pleased to hear that you are feeling better, Ed!”
“Ngikubona, Induna. You hang in there with every fibre of your being and enjoy every moment along the way. Glad to have the opportunity to chuck in my two pennies for a great man. Hamba ngenhliziyo enhle. Much love, Neil.”
“Mr Weston, I am yet another of your students who has amazing memories of you, particularly of the confidence that your personality and humour gave me. I am a Secondary Teacher now (Social sciences) and you are undoubtedly to blame! I know my older brother Arron hugely enjoyed his classes with you as well. Here is a poem for you by a famous published author: Wake up from that slumber Buy yourself a cucumber And eat, eat, eat!”
“Good luck on your journey Ed”
“See you soon big man.”
“Mr a Weston, thank you for all your wonderful updates over the past few months! It has been such an inspiration to see this fundraising raise so much (and continue to do so!), and to see you’re doing so well. You’re a legend, Sir! Jumping joyfully on board here for round 2, with all best wishes and love as always :)”
$40,511 donated

Given by 612 generous donors in 5 months

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  • Donor validated
  • New Zealand registered charity
  • Eligible for tax credit
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Closes on 13 Dec 2019

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