7 weeks to go!
17 March 2018
If we thought the last year was mad, no one could have prepared us for the madness of booking and paying for surgery - and the huge pressure of the final fundraisers taking place.
As many of you know Ella has hydrocephalus and epilepsy - additional to her CP. Both of these conditions are extremely important to manage, but in America, they come at an extreme cost. To the point where we cannot find an insurance company to cover Ella.
Thankfully we have been put in touch with some angels - and Air Ambulance Australasia are busy arranging our travel plans. We know there will be costs, we just don't know what they are yet. We will require a medical specialist to travel with Ella, and perhaps even stay in the US while we are there. So it's still all up and down and emotionally at the moment.
This week Ella did an amazing thing!
She managed to WALK on her frame through the courtyard at the Botanical Gardens. It was a bit wobbly and Mama was scared! She walked herself to exhaustion, and cried when we had to stop, even though she could hardly go on anymore. I hear Queen's "I want to break free" in the background, and know in my heart all this madness is for a very, very good reason. We were at the Gardens as a very special photographer is running a new fundraiser for Ella - and we can't wait to share some cool photos!
Ella's Fairy-tale Ball is on April 7th at Kelliher Estate, from 6.30pm. Please book your tickets online by March 26th so we can arrange catering with Dawsons Catering.
We have put SO much effort into this event, and we really hope you come along and enjoy an incredible evening for a beautiful cause. Live bands, duets, Kapa Haka, fairies, amaaazing prizes including Ed Sheeran's signed guitar, holiday packages, and the chance to win a pink morganite diamond ring at a specially sponsored "Pink Drink" bar! The likes of Liam Malone and Professor Peter O'Connor will share inspiring tales of how they changed the world. And don't even get us started about the food... and the venue! #OMG
Come and be part of changing Ella's world x
Check it out here: http://fairysteps4ella.co.nz/ellas-ball
It really is a crazy time for us all. I myself am feeling the huge amount of pressure building, not only as we give it all a final push, but the reality of heading to a new country for a full-on medical procedure for my precious little girl. She keeps saying when she gets her new legs she's going to jump on the wall.
I think I might just have a proper sleep!
love kat n ella bo x
PS $101,00 and counting ladies & gents x