Fairy Steps 4 Ella

  • $37,731.00 donated
  • 372 generous donors

FairySteps4Ella Focusing on therapy for cerebral palsy for development and growth for Ella.

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Dream Rehabilitation Disability

Ella bo bella arrived into this world weighing 800 grams and 15 weeks early. The odds were stacked against her - but no one knew how tough a tiny fairy could be.

Ella’s Mum and Dad had lost her older sister, Emily, only one year before. The grief and pain was immense – and this tiny fairy carried so much hope for her family.

Ella suffered a Grade 4 brain bleed when she was a few days old. The outlook for her was grim, and Mum and Dad were told she would never walk, never talk, and never recognise them. They took it on, knowing that although the machines helped Ella breathe, her heart was beating to her own drum.

On day 6 Ella was rushed to Starship for emergency bowel surgery. She survived.

On Day 10, she opened her eyes. On Day 12, she was finally stable enough to be held by her Mama.

Day 13 Ella was rushed into surgery again to alleviate pressure on her swelling brain. She pulled through.

Day 20, Ella was almost 3 weeks old, but required another brain surgery to relieve pressure.

This pattern of challenges and trauma and surgery continued.

Ella spent 122 days in NICU both at Auckland and Middlemore, and over a week in Starship's Neurosurgery ward. Every hour there were highs and lows, challenges, infections, weight gains... and a "One Kilo Club" membership.

Then Ella made it home, September 2 – two weeks after her original due date.

Today Ella is a cheeky and social just-turned-4-year old. Her rocky start has resulted in her diagnoses of cerebral palsy, hydrocephalus and epilepsy. This means her legs are too tight to be able to walk and find balance. She requires a shunt to help alleviate pressure in her brain. And relies on daily medications to prevent seizures.

Ella soldiers on regardless of 13 surgeries, multiple ED admissions, physiotherapy, speech lessons, and of course, plenty of giggles, spark and cake.

But now the kid has caught a break. And we need your help.

Ella has been accepted to undergo Selective Dorsal Rhizotomy, in St Louis, Missouri,with the renowned Dr Park. This procedure will give Ella the chance to walk. Walking independently will be possible, dependant on her rehabilitation and management of Hydrocephalus.

We are going to get Ella to St Louis and we ask you to help her.

We are aiming to raise $150,000NZD. This will cover the surgery in St Louis and post-op rehabilitation with their team. It will contribute to flights and accommodation for the 6 week stay. We also aim to use this to contribute to the rehabilitation costs required for Ella to get the most out of this surgery on her return to New Zealand, as there is no support for this in our public health system.

She will get there, one fairy steps at a time…

X thank you

For more information on SDR at St Louis see here

http://www.stlouischildrens.org/our-services/center-cerebral-palsy-spasticity/about-selective-dorsal-rhizotomy-sdr

Also we have learned of an opportunity with TheraSuit

http://therasuit.com.au/

We see this another form of therapy to work alongside Ella's existing sessions to both compliment, support and extend her own understanding of her body. TheraSuit will allow Ella to assume a regular body position and extend her movements for her arms, legs and body. Therasuit can provide strength and endurance pre or post SDR.

Page created by:

Katherine Yearbury

Individual
Auckland

Fairy Steps 4 Ella

To help Ella with opportunities in her development and growth.

Funds will be paid to a verified bank account of Katherine Yearbury.

  • $37,731.00 donated
  • 372 generous donors

$37,731 donated

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This cause page was created on 07 Jul 2016 and closes at 00:00 NZST (UTC +12:00) on 31 Oct 2018.

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