In Sadie's memory - To help Sadie's Mum, Dad and big brother.
The Funds raised will go to Sadie's family ( Mindy, Campbell & Ethan), to cover expenses through a very difficult time
Canterbury
Sadie's time in this world was sadly cut very short. Sadie was born with Cats Eye Syndrome - a rare chromosomal disorder; only 200 a year born in the world. Her major complication was 4 serious congenital heart defects.
In the 7 days Sadie shared our world, she amazingly survived 2 operations. But finally her heart could bear the burden no more.
To give Sadie the best chance at life the family had to take leave from work, and go away from home, family & friends in Christchurch and live in Auckland, at the Ronald McDonald House near Starship. They were advised it could possibly be 4 - 6mths away from home, so lots of extra stresses were also involved.
Now they have to face saying farewell to their little angel, and that daunting task of rebuilding their lives back in Christchurch, without Sadie.
This page is to help the family during this difficult time and also to help cover the costs associated with the funeral and general living expenses.
Sue Murray's involvement (page creator)
I am Sadie's grandmother and I have watched the family financially and emotionally struggle with this heartbreaking situation.
I can try to help emotionally, but am unable to help financially, so am setting up this page to facilitate a place for a helping hand from friends and others.
Latest update
Sadie's story. 10 November 2015
Mindy & Campbell, wanted me to tell Sadie's story. On Tuesday 27th Sadie Maddison was born.
It was a major journey from then. Sadie's rare chromosome disorder... "Cats Eye Syndrome" None of the Dr's & staff working on Sadie at Starship had seen a child with this disorder.
This disorder can have a range of defects, some very minor and if unlucky some quite major Sadie wasn't so lucky. She had some very major heart defects, plus was born with no anus. Both requiring urgent operations.
Due to her heart any procedure or operation was dangerous, even the MRI was high risk as her oxygen had to be taken off.
The first operation was for the Stoma, this is for her a colostomy bag. This was day 4 of her life. She survived this and hope returned.
Day 6 was the major heart reconstruction called the Norwood procedure, plus some other procures, I no-longer know.
From the time she was taken away till we could see her again was a very long 12 hrs . She survived, As we knew the first 24hrs were critical, but the signs were looking hopeful, Sadie was stable and starting to slightly improve.
However at 9.50pm on Day 7 Her heart gave up the fight.
There are further Photos in the Gallery, but be warned they are not pretty. But they are a record of Sadie's Journey
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