Give Anke more time- fight against Cholangiocarcinoma

I am 44 years old and have spent the last 16 months trying to win a battle with a rare cancer, Intrahepatic Cholangiocarcinoma. This cancer has very poor survival rates, there is no known cure other than surgery which has already failed.

Last year a large tumour grew from my bile duct into my liver and into my inferior vena cava (IVC). I was given “months” if I did not have a risky surgery - 70% liver resection, reconstruction of my inferior vena cava, bile ducts and veins. Complications followed ranging from a life-threatening drug reaction, to a pleural effusion.

After this, I had 6 months of chemo and 5 weeks of chemoradiation.

My IVC has since become severely restricted which is physically limiting as there is a lack of blood providing oxygen to my muscles.

After 4 months off treatment the tumours are back. Surgeons have deemed these inoperable, a tumour is sitting on the one remaining hepatic vein, any damage would be fatal.

I am back on chemo to buy myself 9-15 months. I need to pay to have my tumour tested and subsequently fund drugs available overseas. In NZ, certain cancers are monitored, tested and treated. Mine is not and it is so unjust.

I am a mum and a teacher and two weeks ago I had to call time on my 20-year career, I don’t want the same for motherhood.

Help me fight this, help me buy more time with my husband and children, please help me to see my children finish high school.

I will not be able to thank you enough but know that my family and I will never forget.