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Help Eli support Nickolas as he receives urgent treatment for serious medical conditions in Chile.
Christchurch, Canterbury
When a child is sick, parents trust the health system will help. Eli’s family has faced a very difficult journey.
Eli asked doctors to look more closely at Nickolas’s eye. The exam revealed a tumor, causing glaucoma and partial vision loss.
Tests also showed neurofibromatosis type 1,a genetic condition causing tumours along nerves, and peeling skin syndrome, a rare condition causing fragile skin. Both are genetic conditions that Nickolas mutated.
The family travelled to Chile for treatment while doctors decide on surgery, chemotherapy, or both.
Eli is not working and still has expenses in New Zealand. Any support will help the family focus on Nickolas’s health.
Cuando un hijo está enfermo, los padres confían en que el sistema de salud ayudará. Lamentablemente, la familia de Eli ha enfrentado un camino muy difícil.
Todo comenzó cuando Eli pidió revisar con más detalle el ojo de Nickolas. Durante ese examen encontraron un tumor, que provocó glaucoma y pérdida parcial de visión.
Otros estudios mostraron que Nickolas tiene neurofibromatosis tipo 1, que provoca tumores en los nervios, y síndrome de descación de la piel, una enfermedad rara que vuelve la piel muy frágil. Ambas son enfermedades genéticas que Nickolas mutó en el vientre.
La familia viajó a Chile para recibir tratamiento mientras los médicos deciden si será necesario operar, quimioterapia o ambos.
Eli no está trabajando y la familia enfrenta muchos gastos. Cualquier ayuda hará una gran diferencia.
Eli is our friend who is always thinking of others and not herself. We need to be there for her this time.
Tickets. Basic supplies for both kids: nappies, clothes, anything they need. Nz and Chile expenses: moving around the city, legal documents to get Nicko’s Chilean citizenship, eating out while waiting for the doctor, medicine as it’s not all covered, etc.
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