Fundraising for Ladybug Foundation

The Ladybug Foundation is a charitable organisation focussed on supporting families dealing with Neurofibromatosis. Our personal journey with NF has given us a good understanding of what a roller coaster ride NF really is.

The Ladybug Foundation is dedicated to improving well-being of our New Zealand people living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2 and schwannomatosis. NF causes tumors to grow on nerves throughout the body and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities and excruciating and disabling pain. NF is under-recognized and underdiagnosed yet affects more people than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease.

We provide additional financial help when required for those that need to travel for extended hospital visits, major surgeries or provide small gifts during those long stays in hospital. One instance was to help a young family who needed help with transport costs for their young family to stay together as their daughter under went surgery to amputate her leg due to a large Plexiform Neurofibroma. We are here to help all NF patients in the little way that we can!!!

We may have NF but NF doesn’t have us!!!