Fundraising for Ladybug Foundation
Raising awareness for Neurofibromatosis
Bay of Plenty
The Ladybug Foundation is a charity focussed on supporting families dealing with Neurofibromatosis. Our personal journey with NF has given us a good understanding of what a roller coaster ride NF really is.
The Ladybug Foundation is dedicated to improving well-being of our New Zealand people living with neurofibromatosis (NF), a term for three distinct disorders: NF1, NF2 and schwannomatosis. NF causes tumors to grow on nerves throughout the body and can lead to blindness, bone abnormalities, cancer, deafness, disfigurement, learning disabilities and excruciating and disabling pain. NF is under-recognized and underdiagnosed yet affects more people than cystic fibrosis, Duchenne muscular dystrophy and Huntington’s disease combined.
This Foundation is dedicated to making a real difference for not just the NF community but the wider community of New Zealand as awareness is the key to finding a cure so please join us as we head on this journey of awareness……………….
We may have NF but NF doesn’t have us!!!
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