Our beautiful and sassy Maia (a girl with a huge heart), is now up in Starship. She's been battling hard and we need help now pls universe!
Hawke's Bay
This is our beautiful Maia. A vibrant, sassy, knows-what-she-wants kind of girl with a big smile and an even bigger heart. Maia lives with a rare disease called Spinal Muscular Atrophy (SMA), which means (among other things) she has never walked, and the doctors say probably never will due to her low muscle strength. Her Mum is determined to change that statement.
Having SMA also means that Maia's immune system is not as strong as other kids'. This winter she's been battling it hard, with stints in and out of hospital battling pneumonia and associated issues. This week things have got so bad she's had to be flown to Starship, to help her breathe.
For the last 7 years the family has made countless sacrifices (naturally) but it is getting harder and they now need to reach out to the community and universe to help Maia get through one of her toughest times yet.
Mum is giving up her two part time jobs to care for Maia fulltime and see her through with all the nurturing and love she needs. At this time the family would be hugely grateful for any help that would be used to give Maia a boost this winter:
- help with costs of healthy food
- boosting up Maia's immune system with supplements
- costs to help build Maia's health and wellbeing so she can function towards a stronger and happier future
In the future, depending on funds raised, Mum would love to be able to take Maia swimming often, take her regularly to the oesteo for her spine as she has scoliosis too... if we can make that happen.
Thank you in advance for anything that could help this amazing strong little girl, it really takes a village sometimes. Much aroha to you beautiful people... xx
A friend helping make the process easier
At this time the family would be hugely grateful for any help that would be used to build Maia's health and wellbeing this winter so she can function towards a stronger and happier future.
Maia update ❤️🙏 9 September 2019
After a full on few weeks of ups and downs and scary times, here's an update from Maia's mum Tegan which I thought you might like to hear...
Hey friends!
Maia update 🙏🙏🙏
She's starting to sleep better now in her own room👏👏👏👏👏👏
She's off the antibiotics yayy!!!
No more fevers 🙌🙌🙌
And she's getting weaned off the high flow oxygen!!💪💪
On the whole Maia is slowly improving. She's only having physio 2 x a day at the moment to help with coughing up secretions. The Register Doctors for respiratory came down, and they haven't got a clear plan yet. She's sat in her wheelchair for the first time today, playing with play dough & trying to attempt to eat again. Slowly does it the doctors say, as she's been through so much 💙. Not only has she been battling the pneumonia she also has had a virus on top of it!
On the road to recovery now... Hopefully be home in time for my birthday next week lol 😂
Thank you for your support through these times, it's been super hard for us and we are amazed and blessed to have you all in Maia's corner. Your amazing generosity is so so so appreciated by us all.
❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️❤️
- Tegan
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