Please help Caiden and his family

Over the last 6 weeks Caiden hasn't been able to be at home making memories like he should be. Instead he has been staying in Starship Hospital with his mum with what started out as the campylobacter bug, & resulted in finding an anal ulcer on admission that got worse due to the bug. They aren't 100% sure what caused the ulcers, but it could be a combination of the clinical trial chemo drugs, & pressure in his bottom due to sitting for long periods of time. Caiden has undergone several GA's every 3 or so days to have a vac dressing applied to his bottom. This is the best way to promote faster healing. Because of the location of his ulcer, it is a very tricky place to heal, & very hard to get a dressing to stay on for very long. If we can't get his ulcer to heal they have advised that the best way to heal that area is for him to have a temporary colostomy bag. Sadly that comes with very high risks, so we aren't too happy about proceeding with that option.

We have had to make some very tough decisions around the trial. We have decided not to continue with the medication for Caiden. The trial drugs aren't a cure, but are designed to "hopefully" prolong life. If there was a guarantee that this would cure him, we would be willing to proceed with the medication & work through the nasty side effects, but unfortunately this is not a magic medicine. We are going down the natural path now, in hope that he has great results, while having quality of life, and making beautiful memories.