We are asking for help for our youngest daughter Alayna to get the intensive therapies she needs for the best start at a quality life.
Auckland
Our littlest Lever has a rare genetic condition called CACNA1A which comes with life altering challenges for both Alayna and our family. Included in her diagnosis at present is Global Developmental Delay, tonic eye up gaze (eye movement disorder) and also low muscle tone. There is no cure for this condition however, we believe in the Power of Prayer and know that early intervention can do wonders for a person with a disability's quality of life.
We do as much as we can for her here in Nz including physio therapy at home everyday and privately once a week as well as publicly funded help from the district health board (enables us to get access to her accessibility chairs, car seats, ect.)
There is a fantastic program just across the ditch in the GC called The Centre of Movement whom not only will work with Alayna for 2 weeks using a range of therapies to build her strength and development but also train us as parents to be able to take these tools back with us to give her that specified care at home for as long as she should need it.
We are homeschooling our other two daughters & unfortunately Matt is still without work after losing his job during the mandates a little over a year ago so suffice to say, it's been a rough couple of years! Even if we had been saving for a few years, we would not be able to come up with the funds to take this trip, that is where we are hoping you can help.
To find out more about CACNA1A & The Centre of Movement, see "other page links" below.
Please find our new pages for Alayna here https://givealittle.co.nz/cause/help-alayna and here https://givealittle.co.nz/cause/help-alayna-get-to-therapy
All funds raised will be put towards flights and accommodation for our family, 2 weeks of intensive therapy at The Centre Of Movement which includes 3 hours of sessions each day, car rental and groceries while there.
Thank you so much for your generous donation x
Thank you so much Ash and Faith, this means so much to us!! Love you xxxx
Thank you so much Chantal, we are so grateful to you xxx
Wow thank you so so much Josh, Shinjy and Titan, this is so generous of you guys, Alayna is so blessed to have so much support around her xxx love you guys
Thank you so very much! We are so grateful xxx
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