Racing The Reaper

I was diagnosed with endometrial cancer on June 9th, 2022 - the day before my 42nd birthday. After a major surgery and 25 rounds of pelvic radiotherapy I am tentatively cancer free, however things unfortunately became more complicated when I was diagnosed with Lynch Syndrome - the cause of developing my cancer at a young age and in the absence of risk factors.

Lynch syndrome is a genetic mutation that significantly increases cancer risk across a variety of organs such as uterus, ovaries, bowel, bladder/kidney, stomach, skin, brain, and possibly breast.

My estimated lifetime risk of bowel cancer could be as high as 80%, so when I say that I need to make hay while the sun shines I very much mean it!

Undergoing a risk reducing double mastectomy would allow me to eliminate my significant breast cancer risk as this cancer is extremely prevalent in my family. It is a life changing surgery but if it can help me to stay well for longer it is a sacrifice I am more than willing to make!

Unfortunately, due to lack of research linking breast cancer and Lynch syndrome I am not eligible to receive this surgery under the public health system (although they have told me it's definitely a good idea). I have had a consult with a private surgeon and have been quoted approximately 25 000 dollars for this procedure.

I will start my ride on February 19th over six weeks and I am hoping to schedule my surgery once the journey is done.

Here's to Surviving.