Join with us to support Rylee as she faces her battle against an aggressive bone cancer
Waikato
Rylee is a S14 Para Swimmer, swimming for the Matamata swim club and had been preparing for the Brisbane State Championships travelling with the New Zealand Swimming Age Group team. Rylee holds S14 para records for Swimming and had recently travelled to France to swim as part of the New Zealand Virtus global games team.
3 weeks ago Rylee's life was turned upside down when she was diagnosed with an aggressive form of bone cancer called an Osteosarcoma in her proximal humerus. In the 9 weeks since Rylee first felt a niggle in her arm the tumour has taken over her shoulder and upper arm.
Rylee was born with a rare genetic condition called Tuberous Sclerosis Complex. Rylee currently has lesions on her Brain, Heart, Kidneys and Skin. She requires ongoing medical treatment and screening to ensure that none of these growths are impeding her daily function, health and wellbeing. Swimming has become the one thing where she feels she is on a level playing field.
Rylee now faces a nine month battle to save her life and her arm from the aggressive tumour.
Her mother and father, Paul and Amanda are based out of Ronald McDonald while testing and treatment begins to shrink the tumour so they can then try and save her arm.
Those that know Rylee, know she is the most tenacious and resilient young woman they have met. Help support Rylee in fighting the next battle she faces and get her back to the pool where she hopes to represent New Zealand at the 2028 Olympics.
I am a close family friend of the family
Funds will go towards costs such transport, accommodation, food, loss of income and any rehabilitation costs.
This is mostly to help provide financial relief so that the family can focus on Rylee's treatment and recovery
Rylee's update 20 December 2023
As a family we would like to pass on our gratitude for all of the generous donations, kind words and support. It has been exactly 10 weeks since Rylee received her diagnosis of Osteosarcoma and 6 weeks since she had her surgery to remove her tumour. Rylee's surgery resulted in a right arm and shoulder amputation due to aggressive nature of her tumour in her right humerus.
Rylee has continued to be positive and resilient through out. She has not let her amputation dampen her spirit for life and is already planning to have her first swim in the new year. She has embraced her new disability and is proud of who she is and how she looks and hopes she can inspire others in their amputation journey to find the positives in their outcomes.
The funds are going to help Rylee access PINC and STEEL cancer rehabilitation and specific physio to strengthen her core and back to help with her balance as the surgery had taken all her shoulder muscles. This will all help her get back in the pool and start competitively swimming and running again.
He waka eke noa.
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