Severe cardiac diagnosis at 20 weeks gestation worsened to the point it was crushing baby's lungs.
Nationwide
It is with a heavy heart I am announcing my first death and that of my daughter
Sophia-Grace Beverley Goodman
29/01/2021 💜 1:15am 💜 7lb 2oz
29/01/2021 🫀 2:25pm 🫀
Sophia's heart was so enlarged it was basically crushing her lungs, she was intubated 20 minutes after birth except needed hiflo and over the course of the morning her color started changing and things started to worsen.
I got some lovely photos and was able yo bath her, cuddle her, kiss her, and just have her there telling her I loved her all afternoon.
I'm bringing Sophia-Grace home with us (myself and older sister whose been incredibly supportive).
There are some significant costs involved getting her home but am very thankful that due to these circumstances we will be able to pay this at a later date.
Costs are to help with Sophia's transportation services/care and embalming whilest the family meet her prior to making the decision on body burial or a cremation (most likely cremation with the added expense of an urn) and potentially plaque.
I am also expressing breast milk to donate; so will be covering the cost of my pump and storage bags for milk transportation for other babies in need xx
Any left over proceeds will be being split between charities.
So far costs are;
Embalment.
The travel of getting Sophia-Grace home as she was birthed in Auckland.
Casket.
Her outfit.
Cremation.
Transportation to crematorium and chaplain services.
Sophia's Heart 14 February 2021
Hiya all!
Adding another update as I've had quite a few people ask me the story behind this; and I realise I haven't elaborated on my givealittle due to having an instagram page dedicated to Sophia-Grace (_sophias_heart).
At 19 weeks gestation I went for the typical 'gender' / anatomy scan where the lady informed me that my baby had a heart anomality.. I was all alone at the scan.. it was pissing down with rain.. my little sister was sitting in the car with my (now) 4year old son as he wasn't allowed in. After that she asked if I wanted to know the gender, I told her I wasn't going to formally find out because I 'just knew' that Sophia was a girl, but due to her having issues I would. She confirmed that Sophia was indeed, Sophia!
The very next week after tears and fear I was flown to Christchurch so they could give Sophia an echo cardiogram where they went on to diagnose her with severe heart conditions which we (my older sister and I) were told she would need birthed in Auckland so she could have intervention after birth.
From there, it was monthly scans, and the next month it might have been they told me that they weren't sure if Sophia's outcome while interutero.. meaning that my pregnancy could culminate in still birth, and from finding out about her heart cond we were given 'options'. And of course; I chose giving her the best chance at life! My diabetes ended up out of control despite what we did/tried etc which was really trying for me but I pushed and pushed untik the end; we were also told that she may end up with hidrops so since the start of January so was weekly scans until birth ❤️
Her heart went hyperplastic it instead of hypoplastic as they had expected which ended up squishing her lungs Unfortunately 😭
Picture of all her diagnosis'
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