Help us support our little boy through his health journey

We are a family of 7, Dad (Kieran) is currently in his final year at Massey university retraining and Mum is full time with the kiddos.

Hunter was born on 09/05/2023, when he was born we noticed he had a different looking head to our other 4 children. Thinking not much of it we had him checked by the GP, and through a series of tests and scans and specialist appointments he has been diagnosed with Sagittal Craniosynotosis. A rare condition that affects the development and growth of the skull.

Hunter requires multiple major surgeries on his skull to take out parts of bone and put in springs and screws to reshape his head and relieve pressure so it can develop normally. He has a complicated road ahead but we are hopeful for a positive outcome for him.

The skull of a young child is made up of bony plates that allow for the growth of the skull. The sutures between these bony plates normally close by the time the child is between the ages of 2 & 3 years old. Early closing of the suture causes the baby to have an abnormally shaped head together with the risk of intercranial pressure, possible developmental delays and vision impairment to name a few.

Hunter has also had a further setback this week as we found he has a Inguinal Hernia in his lower abdomen that will also require surgery. We are struggling financially on only a student allowance income with part time work when it is available, Caring for Hunter has been difficult for mum he doesn't feed or settle well with his condition