The Life You're Given - a film by Jay Coggeshall and Susan Henoch.
Filmed over 35 years, this film sheds light on the human side of living with a rare disorder, Prader-Willi syndrome.
Nationwide
Director: Jay Coggeshall | Producer: Susan Henoch, 2023, 84 mins. (Website link below.)
SUNDAY 25TH AUGUST 2024 @ 7.30PM. Registration by koha (amount can be hidden).
You can donate as a guest or display your name, but in the receipt section, please insert name / email and TICK "share my name & email address with PWSA." This ensures you are sent the film access link (sent via email by Sat 24th August.)
Join us for this 2nd virtual screening of 'The Life You're Given'. Filmed over 35 years, Jay and Susan offer an intimate and honest portrait of their journey as they navigate the challenges and unexpected joys of dealing with a little-understood and rare genetic disorder. Jay Coggeshall has directed and produced numerous documentary films. He initially started filming his daughter Sophie to create family memories, but when she received a diagnosis of Prader-Willi syndrome at 3 years old, Jay decided to make a film about PWS.
The film will be followed by discussion / chat session for those who would like to talk about the film or any questions and issues it raises.
Everyone is welcome to join us - please share this invite with extended family, friends, and across your support networks. Let's raise lots of awareness and funds for research!
About us
PWSA(NZ) aims to enhance the lives of New Zealanders living with PWS and their families by providing advocacy, education and support services. We strive to improve standards of care, treatment and support for all people living with PWS.
Use of funds
Promoting PWS research and advancing clinical services. Follow this link for more information: https://givealittle.co.nz/org/pwsresearch
Other page links
Latest update
Did you watch our first screening and wish friends and family had watched too? 22 August 2024
This 2nd screening on Sunday @ 7.30pm has been arranged for those who missed the first screening, and on request of viewers to be able to share the film with friends and family.
If you would like your friends, family or networks to watch this film and learn more about PWS, or to understand that families are not alone in their experiences, please don't forget to share this page.
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