+2 images
Main image

The Life You're Given - a film by Jay Coggeshall and Susan Henoch.

$2,167 donated
Given by 63 generous donors in around 4 months

Filmed over 35 years, this film sheds light on the human side of living with a rare disorder, Prader-Willi syndrome.

Nationwide

Director: Jay Coggeshall | Producer: Susan Henoch, 2023, 84 mins. (Website link below.)

SUNDAY 25TH AUGUST 2024 @ 7.30PM. Registration by koha (amount can be hidden).

You can donate as a guest or display your name, but in the receipt section, please insert name / email and TICK "share my name & email address with PWSA." This ensures you are sent the film access link (sent via email by Sat 24th August.)

Join us for this 2nd virtual screening of 'The Life You're Given'. Filmed over 35 years, Jay and Susan offer an intimate and honest portrait of their journey as they navigate the challenges and unexpected joys of dealing with a little-understood and rare genetic disorder. Jay Coggeshall has directed and produced numerous documentary films. He initially started filming his daughter Sophie to create family memories, but when she received a diagnosis of Prader-Willi syndrome at 3 years old, Jay decided to make a film about PWS.

The film will be followed by discussion / chat session for those who would like to talk about the film or any questions and issues it raises.

Everyone is welcome to join us - please share this invite with extended family, friends, and across your support networks. Let's raise lots of awareness and funds for research!

About us

PWSA(NZ) aims to enhance the lives of New Zealanders living with PWS and their families by providing advocacy, education and support services. We strive to improve standards of care, treatment and support for all people living with PWS.

Use of funds

Promoting PWS research and advancing clinical services. Follow this link for more information: https://givealittle.co.nz/org/pwsresearch

Other page links

Read more

Latest update

Update image

Did you watch our first screening and wish friends and family had watched too?  22 August 2024

This 2nd screening on Sunday @ 7.30pm has been arranged for those who missed the first screening, and on request of viewers to be able to share the film with friends and family.

If you would like your friends, family or networks to watch this film and learn more about PWS, or to understand that families are not alone in their experiences, please don't forget to share this page.

https://givealittle.co.nz/cause/the-life-youre-given

Share this update

Read 3 more updates

Read more

Latest donations

Deb
Deb on 25 Aug 2024
$5
Guest Donor
Guest Donor on 25 Aug 2024
Private
Guest Donor
Guest Donor on 25 Aug 2024
$5
Angela
Angela on 25 Aug 2024
$20
Daniel
Daniel on 25 Aug 2024
Private

Who's involved?

Registered Charity
A Registered Charity has legal recognition under the Charities Act 2005.
Tax credit
Donations of over $5 are eligible for a New Zealand charitable giving tax credit.
Page Moderated
The page has been checked by our team to make sure it complies with our terms and conditions.

Gallery

Page Q&A

One question has been asked already. Check it out and ask yours here.

Any concerns?

Report this page
This campaign started on 5 May 2024 and ended on 31 Aug 2024.