The Life You're Given - followed by live Q&A with parents and filmmakers, Jay Coggeshall and Susan Henoch.

$1,877 donated
Given by 47 generous donors in 6 weeks

Filmed over 35 years, this film sheds light on the human side of living with a rare disorder, Prader-Willi syndrome.

Nationwide

Director: Jay Coggeshall | Producer: Susan Henoch, 2023, 84 mins. (Trailer and website links below.)

SCREENING SUNDAY 19TH MAY 2024 @ 2PM. Registration is by koha (donation amount can be hidden).

Choose to display name or donate as a guest donor, BUT in the receipt section, insert name / email and TICK "share my name & email address with PWSA." The film access link will be sent to donors via email by Sat 18th May.

Join us for this special virtual screening of 'The Life You're Given' during PWS awareness month. Filmed over 35 years, Jay and Susan offer an intimate and honest portrait of their journey as they navigate the challenges and unexpected joys of dealing with a little-understood and rare genetic disorder. Jay Coggeshall has directed and produced numerous documentary films. He initially started filming his daughter Sophie to create family memories, but when she received a diagnosis of Prader-Willi syndrome at 3 years old, Jay decided to make a film about PWS.

Everyone is welcome to join us - please share this invite with extended family, friends, and across your support networks. Let's raise lots of awareness and funds for research!

About us

PWSA(NZ) aims to enhance the lives of New Zealanders living with PWS and their families by providing advocacy, education and support services. We strive to improve standards of care, treatment and support for all people living with PWS.

Use of funds

Promoting PWS research and advancing clinical services. Follow this link for more information: https://givealittle.co.nz/org/pwsresearch

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Latest update

Did you miss the event? Do you have friends and family that would like to view?  24 May 2024

We received lots of positve feedback from everyone who viewed the film last weekend. There have also been lots of questions about whether the film will be made available for others to watch, but at this stage the film producers would prefer it was just shown through community screenings.

As there were a few people who were unable to attend and others who are keen to watch, Jay and Susan have permitted us to show a 2ND SCREENING. They are very busy with booked screenings in different parts of the world at the moment so they would probably be unable to join us for Q&A this time, but we would like to show the film, and at a time that would suit most people.

PLEASE EMAIL US if there are DAYS / TIMES BEST FOR YOU, or IF THERE ARE TIMES THAT DO NOT WORK FOR YOU: jo.davies@pws.org.nz

Those who have already donated / registered will be sent a 2nd link when a suitable date / time is decided.

If you know anyone else who may be keen to view, please let them know there will be a 2nd screening and share this givealittle page with them.

There are a few donors that we don't have an email address for. If you did not receive an email invite for the original screening, please check if your donation was one of the below and get in touch as above:

#9093898

#9093588

#9099111

Thanks!

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Helena on 22 May 2024
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This campaign started on 5 May 2024 and ends on 30 Jun 2024.